CureDuchenne

February 8, 2019February 14, 2019

Defying the Odds of Living with Duchenne, Decade After Decade

News

When it comes to Duchenne muscular dystrophy (DMD), Leonardo Feder knows he’s among the lucky ones. A resident of São Paulo, Brazil’s largest city, Feder was diagnosed with Duchenne ... Read more

January 2, 2019January 2, 2019

Neurologist Urges Greater Focus on Brain Issues in Duchenne

News

Close to 85 percent of boys and young men with Duchenne muscular dystrophy have never seen a mental health professional, says a leading neurologist based in Washington, D.C. Mathula ... Read more

December 14, 2018December 14, 2018

Budding Journalist Hawken Miller Offers Advice on Living With Duchenne

News

At 21, Hawken Miller certainly doesn’t look like a typical Duchenne muscular dystrophy patient. For one thing, unlike most boys and young men with Duchenne, Hawken isn’t obese — or ... Read more

December 12, 2018December 12, 2018

Coping with Duchenne: Parents Swap Stories at ‘Futures’ Conference

News

Until her son, Will, was diagnosed with Duchenne muscular dystrophy as a 7-year-old, speech pathologist Tiffany Cook had never heard of the disease. Today, it’s literally her full-time job. ... Read more

December 5, 2018December 5, 2018

Neurologist Brenda Wong Heads New Specialized Duchenne Clinic at UMass

News

For nearly half a year, Brenda Wong, MD, has led New England’s first and only interdisciplinary clinic devoted exclusively to boys and young men with Duchenne muscular dystrophy (DMD). ... Read more

November 30, 2018November 30, 2018

West Virginia Mom of Duchenne Boy Struggles to Make Ends Meet

News

Like many mothers of boys with muscular dystrophy, Deborah Hall hasn’t had an easy life. Hall, the daughter of a chemical engineer and a stay-at-home mom, was one of ... Read more

November 15, 2018November 15, 2018

CureDuchenne and Avidity Biosciences Hosting Webinar Friday on Potential DMD Therapies

News

CureDuchenne and Avidity Biosciences will host a webinar Friday to brief the Duchenne muscular dystrophy (DMD) community on Avidity’s preclinical development of DMD therapy candidates. The webinar will take ... Read more

October 19, 2018October 19, 2018

CureDuchenne and ZappRx Partner to Help DMD Patients More Easily Access Medications

News

The digital health firm ZappRx is working with CureDuchenne to provide faster and more efficient delivery of treatments for Duchenne muscular dystrophy to patients starting next year. ZappRx streamlines the often-complicated ... Read more

October 17, 2018October 17, 2018

CureDuchenne Partners with Baebies to Advance ‘Easy’ Newborn Screening Test for DMD

News

CureDuchenne, a nonprofit advocacy group that supports and promotes research and better care and for people with Duchenne muscular dystrophy (DMD), has announced the launch of a three-year partnership with ... Read more

CureDuchenne

Defying the Odds of Living with Duchenne, Decade After Decade

Top 10 Muscular Dystrophy Articles of 2018

Neurologist Urges Greater Focus on Brain Issues in Duchenne

Budding Journalist Hawken Miller Offers Advice on Living With Duchenne

Coping with Duchenne: Parents Swap Stories at ‘Futures’ Conference

Neurologist Brenda Wong Heads New Specialized Duchenne Clinic at UMass

West Virginia Mom of Duchenne Boy Struggles to Make Ends Meet

CureDuchenne and Avidity Biosciences Hosting Webinar Friday on Potential DMD Therapies

CureDuchenne and ZappRx Partner to Help DMD Patients More Easily Access Medications

CureDuchenne Partners with Baebies to Advance ‘Easy’ Newborn Screening Test for DMD

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