CureDuchenne

August 3, 2018August 3, 2018

New Online Resource, DuchenneXchange, and Its Offerings Explained in Aug. 7 Webinar

News

The nonprofit group CureDuchenne and Connecticut-based rareLife Solutions have launched DuchenneXchange — a dedicated online platform where those interested in Duchenne muscular dystrophy “can share comprehensive, safe, credible resources and information, as well ... Read more

June 13, 2018June 13, 2018

Hockey Player Hosts 8th Annual Golfing Event to Raise Money for CureDuchenne

News

Ryan Getzlaf is hosting the 8th Annual Getzlaf Golf Shootout Sept. 8 to raise funds for CureDuchenne and its mission to find a cure for Duchenne muscular dystrophy (DMD). Getzlaf is the ... Read more

April 16, 2018April 16, 2018

UT Researcher, with Cure Duchenne Support, Launches Company to Treat DMD Using CRISPR/Cas9 Technology

News

Eric Olson, a molecular biologist, has spent more than half his life in the lab. Now, the 62-year-old University of Texas researcher and distinguished professor is a businessman as ... Read more

December 6, 2017December 6, 2017

Green Bay Packers’ Clay Matthews Wears Cleats Designed by DMD Boys to Raise Money for CureDuchenne

News

Clay Matthews of the Green Bay Packers took to the field in Week 13 of the NFL season wearing a cause close to his heart on his feet, as ... Read more

October 30, 2017

CureDuchenne Launches Virtual Mobility Medical Equipment Expo for DMD Patients, Families

News

The nonprofit CureDuchenne launched a new resource for the Duchenne muscular dystrophy (DMD) community called the CureDuchenne Cares Virtual Durable Medical Equipment (DME) Expo. CureDuchenne was founded in 2003 ... Read more

September 25, 2017September 25, 2017

CureDuchenne Takes $50K Prize at Shark Tank-Style Rare Disease Competition

News

The nonprofit group CureDuchenne won $50,000 at a recent Shark Tank-like competition in Irvine, California, to pitch scientific projects. The “RARE Battle of the Brains” competition, held Sept. 14, was organized by ... Read more

June 20, 2017June 20, 2017

FDA Grants RASRx1902 Orphan Drug Status as Potential Therapy for Duchenne Muscular Dystrophy

News

The U.S. Food and Drug Administration has granted RASRx1902 orphan drug status to treat Duchenne muscular dystrophy (DMD), says its developer, RASRx of Newport Beach, California. The Orphan Drug status ... Read more

May 18, 2017

CureDuchenne Partners with MD Group to Offer Support, Care to Patients in Nepal

News

CureDuchenne has partnered with the Muscular Dystrophy Organization Nepal (MDON) to help deliver better care to Duchenne muscular dystrophy (DMD) patients in that country, and education and support for their families. ... Read more

May 3, 2017May 3, 2017

7th Annual Getzlaf Golf Shootout to Raise Funds for CureDuchenne Kicks Off In September

News

The 7th Annual Getzlaf Golf Shootout to benefit CureDuchenne will take place Sept. 9 at Monarch Beach Golf Links in Dana Point, California. Brian Hayward will present the event, which will be hosted by the captain ... Read more

April 11, 2017April 11, 2017

Duchenne Muscular Dystrophy Bill SB 643 Passes California Senate Health Committee By 8-0 Vote

News

CureDuchenne has announced its enthusiastic support and sponsorship of California Senate bill SB 643, which adds Duchenne muscular dystrophy to California’s Genetically Handicapped Persons Program (GHPP) list of eligible medical conditions. The ... Read more

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