The Stanford Comprehensive Neuromuscular Clinic at Lucile Packard Children’s Hospital (Stanford) was recently named by the Parent Project Muscular Dystrophy (PPMD) as a Certified Duchenne Care Center. The PPMD is a nonprofit organization on the forefront of the fight against Duchenne muscular dystrophy (Duchenne) and a crucial source of patient and research support for those suffering from Duchenne. Stanford is now the 8th center to receive this certification.
Since the Duchenne gene belongs to the X-chromosome, it primarily affects boys. Duchenne muscular dystrophy affects one live male birth in every 3,500-5,000 and is the most common fatal genetic disorder diagnosed during childhood. The disease results in progressive weakness of the muscles and it can lead to serious problems in the lungs and heart.
John W. Day is the head of Stanford Comprehensive Neuromuscular Clinic at Lucile Packard Children’s Hospital. Dr. Day has more than 25 years of experience in diagnosing, treating and supporting patients with neuromuscular diseases and he is involved in ongoing research projects to define the causes, the diagnosis and new treatments of genetic neuromuscular disorders.
“Dr. Day has been a longtime partner in the Duchenne community as an advocate for both optimal care in the patient community and as a leading researcher in muscular dystrophy. The clinical team he has assembled at Stanford is a shining example of the skill compassion and understanding we look for in certifying clinics. Congratulations and thank you to Dr. Day and everyone at Stanford Comprehensive Neuromuscular Clinic,” said the PPMD’s Senior Vice President, Kathi Kinnett in a press release.
“Given PPMD’s preeminent role in the Duchenne muscular dystrophy community we are honored that the Stanford Comprehensive Neuromuscular Program is being recognized as a PPMD Certified Duchenne Care Center. The Stanford Neuromuscular Team of experts is fully aligned with PPMD’s mission of conquering Duchenne’s effects on families children and adults; we look forward to linking arms with all PPMD Certified Duchenne Care Centers to attain our common goal of optimizing care which is the foundation for both successful research of future treatments and effective advocacy so those with Duchenne can lead more fulfilling lives today,” concluded Dr. Day.