Massachusetts-based charity the FSH Society, dedicated to shedding light on the acioscapulohumeral muscular dystrophy (FSHD) — a little-known variant of the incurable disorder, has been awarded its seventh consecutive Charity Navigator four-star rating. Only two percent of the
charities rated by the Charity Navigator — an independent nonprofit watchdog corporation that vets the legitimacy and efficiency of charities in the United States — have received at seven or more consecutive four-star evaluations. This indicates the FSH Society’s outperformance of most other charities in America.
A four out of a possible four stars Charity Navigator rating is a indicator of the FSH Society’s adherence to good governance and other best practices that indicate minimal likelihood of unethical activities and that the charity consistently executes its mission in a fiscally responsible way. This high rating distinguishes the FSH Society as superior in these attributes than most other charitable organizations, and demonstrates that they are worthy of the public’s trust.
“As the nonprofit sector continues to grow at an unprecedented pace, savvy donors are demanding more accountability, transparency and quantifiable results from the charities they choose to support with their hard-earned dollars,” says John P. Dugan, Charity Navigator’s founder and chairman of the board. “Our goal in all of this is to provide donors with essential information needed to give them greater confidence in the charitable choices they make.”
The FSH Society has several fundraising events scheduled to take place across the country this summer and fall, and is seeking companies, foundations and individuals to sponsor these events, which they can do in confidence knowing that the funds will be well spent. In 2013, 87.4 cents of every dollar raised by the FSH Society went directly to programs rather than administration overhead — a high efficiency ratio that they bettered in 2014, during which 91.7 cents of each dollar taken in went to programs.
The FSH Society’s 2015 calendar includes:
July 11, Hickory Corners, Michigan – Third Annual Lake Party for FSHD.
July 17, San Francisco, California – Songs in the Key of Steven Blier, a benefit auction and concert with pianist Steven Blier and meteoric soprano Julia Bullock.
October 4, Ashtabula, Ohio – Cosie Laurello Memorial 5K and 10K Run.
October 18, Los Angeles, California – Ghostly Gala to Vanish FSHD.
“This four-star rating shines a light on the efforts we put in to ensure that the FSH Society is efficient, ethical and open,” observes FSH Society President and CEO Daniel Perez. “We are excited and honored to be recognized as one of the top charities in the country.”
Founded in 1991 by two FSHD patients, the non-profit FSH Society is a world leader in combating muscular dystrophy, and has provided millions of dollars in seed grants to pioneering research worldwide, and created an international collaborative network of patients and researchers. The Society endeavors to serve as a information and support source for all persons with FSHD and their families, and to act as a driving force in development of research focused on treatments and ultimately a cure. The Society’s mission is to support FSHD patients and research focused on the disease through effective engagement of governmental and private sector organizations and entities. The FSH Society offers a support community, news, and information for FSHD patients and families through its website at:
For more information about FSHD, the Society can be contacted by telephone at 781-301-6649.
The FSH Society
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