30 Days of MD: LGMD Awareness Day

30 Days of MD: LGMD Awareness Day

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Day 12 of #30daysofMD Introducing Carol Abraham and LGMD Awareness Day Limb Girdle Muscular Dystrophy (LGMD) Awareness Day was founded by Carol Abraham, who has lived with LGMD since childhood. Through collaboration with a variety of LGMD focused foundations and organizations, Carol began plans to organize the first LGMD Awareness Day which was celebrated on September 30, 2015. Over the past 5 years, Limb Girdle Muscular Dystrophy Awareness Day has become an annual collaborative effort to globally raise awareness. The focus is to provide educational information and resources for the LGMD community and others via social media, on-line, and at various events. The goal is to educate the public and unite the LGMD community while also raising awareness of the many individuals living with this disease worldwide. The fifth annual global “Limb Girdle Muscular Dystrophy Awareness Day” will be held on September 30th, 2019. Advocacy has been an important facet of her life! Carol is the Director of Community Outreach for Coalition to Cure Calpain 3, an organization with the mission to find a treatment and cure for Limb Girdle Muscular Dystrophy Type 2A (LGMD2A). In addition, Carol serves as the Vice Chairperson of the National Limb Girdle Muscular Dystrophy Conference, (a program and project of The Speak Foundation). The first ground-breaking LGMD conference was just held in Chicago, over Labor Day weekend. This historic event was attended by over 400 individuals from 20 countries and brought together individuals with LGMD, family members, researchers, physicians, and biotech companies all in one place with the goal to provide momentum to emerging treatments. Carol was also Ms. Wheelchair Wisconsin 2016 and focused on disability advocacy during her reign. Living with a progressive neuromuscular disease is indeed challenging but it hasn’t slowed Carol down. Carol is a graduate of Mount Mary University and worked as an Occupational Therapist (OTR) for 20+ years. She and her husband Tim have been married for over 28 years. Carol and Tim have a wonderful “Can Do” attitude and maintain a very busy lifestyle. Her motto in life is “Together We Are Stronger!”

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