CureDuchenne Offers One-Stop Informative Guide on Durable Medical Equipment

CureDuchenne Offers One-Stop Informative Guide on Durable Medical Equipment

To help families find the ideal equipment at every stage of need for those with Duchenne muscular dystrophy (DMD), CureDuchenne launched on its website a comprehensive and interactive guide.

Presenting the latest offerings together in one place, the digital Durable Medical Equipment Guide (DME) is meant to reduce frustration by helping caregivers make informed decisions without hours and hours of research. The resource will be regularly updated so that information is current.

“With a commitment to supporting the Duchenne community with best practices in care until a cure is found, we are thrilled to offer the online DME Guide to families,” said Debra Miller, CureDuchenne founder and CEO, in a press release.

“While parents and caregivers are determined to find the right equipment that will help keep their loved ones active in any way possible, we are determined to help them make the best decisions by providing them with all the resources they need in one place,” Miller added.

In DMD, symptoms typically begin to appear between ages 1 and 6, and muscle strength and function gradually decline over time.

Symptoms in toddlers usually start with muscle weakness in the shoulders, hips and pelvic areas. As the disorder develops, other muscles, including those in the arms, legs and trunk, begin to show damage, and patients gradually lose the ability to walk.

Connect with other people and share tips on how to manage Muscular Dystrophy in our forums!

Mobility equipment can help those living with Duchenne continue to participate in daily life and be as independent as possible.

The guide is divided into easily navigable sections, including mobility devices such as scooters, vehicle conversions, adaptive strollers, seating systems and the like; orthoses, which has resting hand splints, ankle foot orthoses, and upper extremity assist products; home equipment, with products such as hospital beds, gait belts and adapted toilet systems; and respiratory devices, which offers information on non-invasive ventilation, one-way valve, cough assist, vibration vests and other items.

Each equipment category includes a product overview; information regarding the most appropriate stage for use, and when to use and when to avoid using; key product features; tips; and information on manufacturers that consumers may order.

Complete with photos, the website also offers CureDuchenne-produced videos, educational links such as a Centers for Disease Control and Prevention caregiving article, and downloadable information about equipment and usage, including a safety guide for patient lifts.

According to the non-profit CureDuchenne, some 300,000 boys globally are living with the degenerative disease. The most common type of muscular dystrophy, DMD is estimated to occur in 1 in every 3,500 male births.

Mary M. Chapman began her professional career at United Press International, running both print and broadcast desks. She then became a Michigan correspondent for what is now Bloomberg BNA, where she mainly covered the automotive industry plus legal, tax and regulatory issues. A member of the Automotive Press Association and one of a relatively small number of women on the car beat, Chapman has discussed the automotive industry multiple times of National Public Radio, and in 2014 was selected as an honorary judge at the prestigious Cobble Beach Concours d’Elegance. She has written for numerous national outlets including Time, People, Al-Jazeera America, Fortune, Daily Beast, MSN.com, Newsweek, The Detroit News and Detroit Free Press. The winner of the Society of Professional Journalists award for outstanding reporting, Chapman has had dozens of articles in The New York Times, including two on the coveted front page. She has completed a manuscript about centenarian car enthusiast Margaret Dunning, titled “Belle of the Concours.”
Total Posts: 307
Margarida graduated with a BS in Health Sciences from the University of Lisbon and a MSc in Biotechnology from Instituto Superior Técnico (IST-UL). She worked as a molecular biologist research associate at a Cambridge UK-based biotech company that discovers and develops therapeutic, fully human monoclonal antibodies.
×
Mary M. Chapman began her professional career at United Press International, running both print and broadcast desks. She then became a Michigan correspondent for what is now Bloomberg BNA, where she mainly covered the automotive industry plus legal, tax and regulatory issues. A member of the Automotive Press Association and one of a relatively small number of women on the car beat, Chapman has discussed the automotive industry multiple times of National Public Radio, and in 2014 was selected as an honorary judge at the prestigious Cobble Beach Concours d’Elegance. She has written for numerous national outlets including Time, People, Al-Jazeera America, Fortune, Daily Beast, MSN.com, Newsweek, The Detroit News and Detroit Free Press. The winner of the Society of Professional Journalists award for outstanding reporting, Chapman has had dozens of articles in The New York Times, including two on the coveted front page. She has completed a manuscript about centenarian car enthusiast Margaret Dunning, titled “Belle of the Concours.”
Latest Posts
  • Avidity
  • Duchenne Registry app
  • CureDuchenne Biobank
  • observational trial