Author Archives: BNS Staff

30 Days of MD: The Things People Don’t Tell You

Photo courtesy of Zee Zelinski Day 30 of 30 This is Zee Zelinski’s (@the.beautiful.gods) story: There are things no one tells you after receiving a diagnosis. No one could have possibly prepared you for what you’re about to go through. This was not your fault. Feel the…

30 Days of MD: Mito Has Brought About New Passions

Photo courtesy of Cynthia Mayeshiro Day 29 of 30 This is Cynthia Mayeshiro’s story: As a young woman, my passion was mountaineering. I felt at home in the backcountry. My outdoor skills became refined with every hike. I learned to stay safe, to reach my destination, and to know…

30 Days of MD: Chasing and Redefining Independence for Myself

Photo courtesy of Meredith Huml Day 28 of 30 This is Meredith Huml’s story: Independence has been a goal of mine for many years. I haven’t always chased after it in the healthiest manner. I need help in different ways than most people. I don’t like to make unusual…

30 Days of MD: Dream Big, Work Hard, and Never Give Up

Photo courtesy of Scott Bisi Day 27 of 30 This is Scott Bisi’s (@cougarhousegarage) story: My name is Scott Bisi, and I have always had big dreams. Living with muscular dystrophy (MD) and wanting to follow my dream of working in the automotive industry was challenging at first.

30 Days of MD: I’ve Mastered the Skill of Getting Stuff Done

Photo courtesy of Mindy Henderson Day 26 of 30 This is Mindy Henderson’s (@mindyhendersonspeaks) story: When my daughter was 12, I went with her to a parent’s night at a community event. We got into small groups and the kids each had to say what they liked best…

30 Days of MD: A Grandmother’s Perspective

Photo courtesy of Hannah Lowe Day 25 of 30 This is Elizabeth Lowe’s story: My grandson Austin was diagnosed with LMNA-related congenital muscular dystrophy (L-CMD) just before the pandemic lockdown in early 2020. My daughter, Hannah, and her husband, Mark, had noticed that Austin had stopped picking up…

30 Days of MD: Getting Fit with FSHD

Photo courtesy of Faye Flatt Day 24 of 30 This is Faye Flatt’s story: I was diagnosed with Facioscapulohumeral muscular dystrophy (FSHD) at age 21 when my cousin was referred to a neuromuscular specialist who asked to see family members with similar physical characteristics. My mother was diagnosed…

30 Days of MD: Giving Up Is Not an Option

Photo courtesy of Anjélica Ramírez Day 23 of 30 This is Anjélica Ramírez’s story: My name is Angélica Ramírez. I just turned 23 years old. I am a writer and a student in my penultimate year of medicine. Throughout my life, I have suffered great adversities associated with my…

30 Days of MD: Why I Became a Therapist

Photo courtesy of Briana Mills Day 22 of 30 This is Briana Mills’ (@brianamills) story: I always knew I was different. As one of the only physically disabled children in regular public school classes, I was shamed by other kids because of my disability. Learning how to navigate…

30 Days of MD: Hope Is a Powerful Weapon Against Duchenne

Photo courtesy of Betty Vertin Day 21 of 30 This is Betty Vertin’s (@bettyvertin) story: My name is Betty Vertin. I live in Nebraska with my husband and children. My family is big! Three of my sons are living with Duchenne muscular dystrophy (DMD). Their names are…