Hawk's-Eye View - a Column by Hawken Miller

constipation, Dungeons & Dragons, COVID-19 vaccine

Hawken is a recent graduate from the University of Southern California and a young journalist with Duchenne muscular dystrophy. He has previously worked for the Washington Post, Sacramento Bee, KTLA 5 News and at USC Annenberg Media. When not writing columns, he’s reporting on rare disease-related news for the publisher of this website, BioNews.

Finding a Job That’s a Good Fit for You and Your Health

I realize that having a full-time job as well as Duchenne muscular dystrophy can be challenging. Balancing my time between self-care, including stretching and doctor’s appointments, and work can be physically and emotionally draining. That’s why you must find a job that is a good fit for your situation.

Goals Can Simplify Our Complicated Lives

It can sometimes feel like everything is against us when doctor appointments and physical barriers bombard us. If we focus on the day-to-day challenges, we forget what we’re doing on earth. I recently discovered that practical goal setting helps you accomplish more than you ever thought possible. The mere act…

Redefining the Word ‘Independence’

Since early childhood, we have all strived to become independent. We want to be able to do things on our own. However, to achieve independence with Duchenne muscular dystrophy, we must flip the typical definition of the word on its head.  When we think about…

An Open Letter to Duchenne Parents

Whether your child has been living with Duchenne muscular dystrophy for years or was just diagnosed, I’m here to remind you that it isn’t the end of the world. It’s just the beginning, and there’s more hope than ever.  You have…