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CREATED:20250225T184050Z
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SUMMARY:CureDuchenne Workshop: Philadelphia
DESCRIPTION:Join us for a free\, full day workshop focused on improving the quality of life for individuals with Duchenne and Becker Muscular Dystrophy. Insightful presentations on standards of care\, family support\, physical therapy and medical equipment\, research and clinical trials\, and an open house with local resources\, equipment vendors and pharma/biotech representatives. Breakfast and lunch are provided\, travel assistance available for eligible applications.
URL:https://musculardystrophynews.com/event/cureduchenne-workshop-philadelphia/
LOCATION:Sheraton Philadelphia University City Hotel\, 3549 Chestnut St\, Philadelphia\, PA\, 19104\, United States
CATEGORIES:CureDuchenne
ATTACH;FMTTYPE=image/png:https://musculardystrophynews.com/wp-content/uploads/2025/02/Workshop-Philadelphia-PA.png
ORGANIZER;CN="CureDuchenne":MAILTO:emilie@cureduchenne.org
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250801T160000
DTEND;TZID=America/Chicago:20250805T140000
DTSTAMP:20260403T083222
CREATED:20250227T180910Z
LAST-MODIFIED:20250303T195147Z
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SUMMARY:Scientific & Family (SciFam) Conference
DESCRIPTION:SciFam is a four day\, in-person\, neuromuscular conference for stakeholders in congenital muscular dystrophy\, nemaline myopathy\, and titinopathy. This event is being hosted by Cure CMD\, A Foundation Building Strength for Nemaline Myopathy and Team Titin. Please email scifam@curecmd.org for more information.
URL:https://musculardystrophynews.com/event/scientific-family-scifam-conference/
LOCATION:Hilton Philadelphia at Penn’s Landing\, 201 S Christopher Columbus Bl\, Philadelphia\, PA\, 19106\, United States
CATEGORIES:Cure CMD
ORGANIZER;CN="Cure CMD":MAILTO:info@curecmd.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20250522
DTEND;VALUE=DATE:20250526
DTSTAMP:20260403T083222
CREATED:20250225T174055Z
LAST-MODIFIED:20250225T174055Z
UID:10000006-1747872000-1748217599@musculardystrophynews.com
SUMMARY:CureDuchenne FUTURES Annual Conference
DESCRIPTION:The CureDuchenne FUTURES National Conference is an annual event focused on bringing education\, connection\, and hope to individuals and families affected by Duchenne muscular dystrophy. FUTURES attendees are guaranteed exclusive access to important updates on therapeutic research\, thoughtful discussions on the emerging approaches to care that enhance quality of life\, a wealth of valuable resources and time well-spent with the Duchenne community. This conference is family-friendly with plenty of activities for everyone! Check out last year’s event: https://youtu.be/o4YtHc_GEJw?si=uchgN2Hoyzi685DG
URL:https://musculardystrophynews.com/event/cureduchenne-futures-annual-conference/
LOCATION:JW Marriott San Antonio Hill Country Resort & Spa\, 23808 Resort Pkwy\, San Antonio\, TX\, 78261\, United States
CATEGORIES:CureDuchenne
ATTACH;FMTTYPE=image/png:https://musculardystrophynews.com/wp-content/uploads/2025/02/CureDuchenne-Future-Conference-Logo-e1740505134507.png
ORGANIZER;CN="CureDuchenne":MAILTO:emilie@cureduchenne.org
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250426T130000
DTEND;TZID=America/Chicago:20250426T140000
DTSTAMP:20260403T083222
CREATED:20250227T182915Z
LAST-MODIFIED:20250303T195241Z
UID:10000012-1745672400-1745676000@musculardystrophynews.com
SUMMARY:Cure CMD Webinar: Recreational Sports Opportunities
DESCRIPTION:Finding your place in sports can be challenging for those living with CMD. Learn how to successfully start your\nown local adaptive league with peers just like you. We’ll share exciting opportunities to create one-of-a-kind memories with an athlete\, team\, or sports organization for those living with a rare disease. Please email outreach@curecmd.org for more information.
URL:https://musculardystrophynews.com/event/cure-cmd-webinar-recreational-sports-opportunities/
LOCATION:FL
CATEGORIES:Cure CMD
ATTACH;FMTTYPE=image/png:https://musculardystrophynews.com/wp-content/uploads/2025/02/Cure-CMD-Webinar-Image-e1740680910430.png
ORGANIZER;CN="Cure CMD":MAILTO:info@curecmd.org
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250405T080000
DTEND;TZID=America/Chicago:20250405T160000
DTSTAMP:20260403T083222
CREATED:20250225T183607Z
LAST-MODIFIED:20250225T183607Z
UID:10000008-1743840000-1743868800@musculardystrophynews.com
SUMMARY:CureDuchenne Workshop: Nashville
DESCRIPTION:Join us for a free\, full day workshop focused on improving the quality of life for individuals with Duchenne and Becker Muscular Dystrophy. Insightful presentations on standards of care\, family support\, physical therapy and medical equipment\, research and clinical trials\, and an open house with local resources\, equipment vendors and pharma/biotech representatives. Breakfast and lunch are provided\, travel assistance available for eligible applications.
URL:https://musculardystrophynews.com/event/cureduchenne-workshop-nashville/
LOCATION:Nashville Marriott at Vanderbilt University\, 2555 West End Ave\, Nashville\, TN\, 37203\, United States
CATEGORIES:CureDuchenne
ATTACH;FMTTYPE=image/png:https://musculardystrophynews.com/wp-content/uploads/2025/02/workshop-Nashville.png
ORGANIZER;CN="CureDuchenne":MAILTO:emilie@cureduchenne.org
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250316T070000
DTEND;TZID=America/Chicago:20250319T120000
DTSTAMP:20260403T083222
CREATED:20250225T164114Z
LAST-MODIFIED:20250303T180750Z
UID:10000005-1742108400-1742385600@musculardystrophynews.com
SUMMARY:2025 MDA Clinical & Scientific Conference
DESCRIPTION:Join us in shaping the future of neuromuscular disease research and care at the MDA’s 2025 Clinical and Scientific Conference. The record number of participants from around the globe at our 2024 conference underscores the vital role our gathering plays in advancing the field of neuromuscular medicine and bringing ever more powerful therapies to people living with neuromuscular disease. No other conference in our space commands the attention and engagement of clinicians\, researchers\, allied health professionals\, industry\, and patient advocates quite like ours. \nOur collective efforts over many years have brought us into a prolific era for drug development. This Era of Treatments has been marked by groundbreaking discoveries and innovative therapies that bring new hope to our community. These include major advances in genetic therapies\, treatments for ultrarare conditions and parsing emerging data points that help us visualize new paths forward for ending neuromuscular disease. The value of being part of this conference is unparalleled. At the MDA Clinical and Scientific Conference\, you and your organization gain visibility and alignment with cutting-edge research and compassionate care\, and benefit from discussions about the latest scientific advancements\, collaborative opportunities\, and opportunities to shape the future of neuromuscular medicine. The momentum we are building is extraordinary. The synergy of our diverse expertise and shared dedication propels us towards unprecedented achievements and meaningful change for children and adults pursuing longer\, stronger\, more independent lives. Join us and be part of a global movement that continues to push the boundaries of what is possible. \nIf you are a patient or caregiver interested in attending the in-person conference or an MDA volunteer interested in attending virtually\, please complete this form before registering: https://web.cvent.com/event/a0e62898-47b9-4b88-88b8-aca631f6a834/register?RefId=2025+Attendee+Registration+Email&rp=84e6d5ae-6b69-4e5c-b84d-614504db238c
URL:https://musculardystrophynews.com/event/mda-clinical-scientific-conference/
LOCATION:Hilton Anatole\, 2201 N Stemmons Freeway\, Dallas\, TX\, 75207\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://musculardystrophynews.com/wp-content/uploads/2025/02/2025-Conference-Lockup-final.jpg
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250301T080000
DTEND;TZID=America/Chicago:20250301T160000
DTSTAMP:20260403T083222
CREATED:20250225T183147Z
LAST-MODIFIED:20250225T183217Z
UID:10000007-1740816000-1740844800@musculardystrophynews.com
SUMMARY:CureDuchenne Workshop: Birmingham
DESCRIPTION:Join us for a free\, full day workshop focused on improving the quality of life for individuals with Duchenne and Becker Muscular Dystrophy. Insightful presentations on standards of care\, family support\, physical therapy and medical equipment\, research and clinical trials\, and an open house with local resources\, equipment vendors and pharma/biotech representatives. Breakfast and lunch are provided\, travel assistance available for eligible applications.
URL:https://musculardystrophynews.com/event/cureduchenne-workshop-birmingham/
LOCATION:Elyton Hotel\, Autograph Collection\, 1928 1st Ave N.\, Birmingham\, AL\, 35203\, United States
CATEGORIES:CureDuchenne
ATTACH;FMTTYPE=image/png:https://musculardystrophynews.com/wp-content/uploads/2025/02/Workshop-BIRMINGHAM.png
ORGANIZER;CN="CureDuchenne":MAILTO:emilie@cureduchenne.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241109T100000
DTEND;TZID=America/Chicago:20241109T153000
DTSTAMP:20260403T083222
CREATED:20241022T201422Z
LAST-MODIFIED:20241022T201422Z
UID:10000004-1731146400-1731166200@musculardystrophynews.com
SUMMARY:MDA Engage Symposium: Dallas\, TX
DESCRIPTION:This Engage Symposium will offer sessions on amyotrophic lateral sclerosis (ALS)\, Duchenne muscular dystrophy (DMD)\, Becker muscular dystrophy (BMD)\, myotonic dystrophy\, ultra-rare neuromuscular diseases\, as well as research and clinical trial updates for all diagnoses. There will also be daily living sessions that are relevant for people living with all types of neuromuscular disease such as nutrition\, exercise\, and transitioning to adulthood. Attendees will also have the chance to connect socially with others in the community and browse our Community Resource Hall to learn about other organizations and businesses supporting the neuromuscular community.
URL:https://musculardystrophynews.com/event/mda-engage-symposium-dallas-tx/
LOCATION:Renaissance Dallas Hotel\, 2222 N Stemmons Fwy\, Dallas\, TX\, 75207\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://musculardystrophynews.com/wp-content/uploads/2024/10/MDA-Engage-Symposium-Dallas.jpg
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241109T100000
DTEND;TZID=America/Chicago:20241109T153000
DTSTAMP:20260403T083222
CREATED:20241022T201415Z
LAST-MODIFIED:20241022T201415Z
UID:10000003-1731146400-1731166200@musculardystrophynews.com
SUMMARY:MDA Engage Symposium: Irvine\, CA
DESCRIPTION:This Engage Symposium will offer sessions on myasthenia gravis (MG)\, Pompe disease\, spinal muscular atrophy (SMA)\, and myositis\, as well as research and clinical trial updates for all diagnoses. There will also be daily living sessions that are relevant for people living with all types of neuromuscular disease such as navigating insurance\, mental health\, and exercise. Attendees will also have the chance to connect socially with others in the community and browse our Community Resource Hall to learn about other organizations and businesses supporting the neuromuscular community. MDA is pleased to have Dr. Tahseen Mozaffar\, neurologist at UC Irvine chairing this Engage Symposium.
URL:https://musculardystrophynews.com/event/mda-engage-symposium-irvine-ca/
LOCATION:The Beckman Center\, 100 Academy Way\, Irvine\, CA\, 92617\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://musculardystrophynews.com/wp-content/uploads/2024/10/MDA-Engage-Symposium-Irvine.jpg
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241102T100000
DTEND;TZID=America/Chicago:20241102T153000
DTSTAMP:20260403T083222
CREATED:20241022T201405Z
LAST-MODIFIED:20241022T201428Z
UID:10000002-1730541600-1730561400@musculardystrophynews.com
SUMMARY:MDA Engage Symposium: Stanford\, CA
DESCRIPTION:This Engage Symposium will provide updates on all neuromuscular diseases including Duchenne muscular dystrophy (DMD)\, Becker muscular dystrophy (BMD)\, amyotrophic lateral sclerosis (ALS)\, spinal muscular atrophy (SMA)\, myasthenia gravis (MG)\, limb-girdle muscular dystrophy (LGMD)\, myotonic dystrophy (DM)\, Charcot-Marie-Tooth disease (CMT)\, Pompe disease\, Lambert-Eaton myasthenic syndrome (LEMS)\, Friedreich Ataxia (FA)\, facioscapulohumeral muscular dystrophy (FSHD)\, and several others. Attendees will also have the chance to connect socially with others in the community and browse our Community Resource Hall to learn about other organizations and companies supporting the neuromuscular community. \nMDA is pleased to have Dr. John W. Day\, neurologist at Stanford University chairing this Engage Symposium.
URL:https://musculardystrophynews.com/event/mda-engage-symposium-stanford-ca/
LOCATION:Li Ka Shing Learning and Knowledge Center- Paul & Mildred Berg Hall\, 291 Campus Drive\, Stanford\, CA\, 94305\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://musculardystrophynews.com/wp-content/uploads/2024/10/MDA-Engage-Symposium-Stanford.jpg
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241005T100000
DTEND;TZID=America/Chicago:20241005T150000
DTSTAMP:20260403T083222
CREATED:20241022T201346Z
LAST-MODIFIED:20241022T201432Z
UID:10000001-1728122400-1728140400@musculardystrophynews.com
SUMMARY:MDA Engage Symposium: Atlanta\, GA
DESCRIPTION:This Engage Symposium will offer sessions on amyotrophic lateral sclerosis (ALS)\, spinal muscular atrophy (SMA)\, Duchenne muscular dystrophy (DMD)\, Becker muscular dystrophy (BMD)\, research and clinical trial updates for all diagnoses\, as well as sessions on daily living such as nutrition\, exercise\, and transitioning to adulthood. Attendees will also have the chance to connect socially with others in the community and browse our Community Resource Hall to learn about other organizations and businesses supporting the neuromuscular community. MDA is pleased to have Dr. Jun Ho Kim from Children’s Hospital of Atlanta and Dr. Jonathan Glass from Emory University co-chairing this Engage Symposium.
URL:https://musculardystrophynews.com/event/mda-engage-symposium-atlanta-ga/
LOCATION:Emory Conference Center Hotel\, 1615 Clifton Road\, Atlanta\, GA\, 30329\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://musculardystrophynews.com/wp-content/uploads/2024/10/MDA-Engage-Symposium-Atlanta.jpg
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
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