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DTSTART;VALUE=DATE:20250522
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SUMMARY:CureDuchenne FUTURES Annual Conference
DESCRIPTION:The CureDuchenne FUTURES National Conference is an annual event focused on bringing education\, connection\, and hope to individuals and families affected by Duchenne muscular dystrophy. FUTURES attendees are guaranteed exclusive access to important updates on therapeutic research\, thoughtful discussions on the emerging approaches to care that enhance quality of life\, a wealth of valuable resources and time well-spent with the Duchenne community. This conference is family-friendly with plenty of activities for everyone! Check out last year’s event: https://youtu.be/o4YtHc_GEJw?si=uchgN2Hoyzi685DG
URL:https://musculardystrophynews.com/event/cureduchenne-futures-annual-conference/
LOCATION:JW Marriott San Antonio Hill Country Resort & Spa\, 23808 Resort Pkwy\, San Antonio\, TX\, 78261\, United States
CATEGORIES:CureDuchenne
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ORGANIZER;CN="CureDuchenne":MAILTO:emilie@cureduchenne.org
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DTSTART;TZID=America/Chicago:20250801T160000
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SUMMARY:Scientific & Family (SciFam) Conference
DESCRIPTION:SciFam is a four day\, in-person\, neuromuscular conference for stakeholders in congenital muscular dystrophy\, nemaline myopathy\, and titinopathy. This event is being hosted by Cure CMD\, A Foundation Building Strength for Nemaline Myopathy and Team Titin. Please email scifam@curecmd.org for more information.
URL:https://musculardystrophynews.com/event/scientific-family-scifam-conference/
LOCATION:Hilton Philadelphia at Penn’s Landing\, 201 S Christopher Columbus Bl\, Philadelphia\, PA\, 19106\, United States
CATEGORIES:Cure CMD
ORGANIZER;CN="Cure CMD":MAILTO:info@curecmd.org
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DTSTART;TZID=America/Chicago:20250913T080000
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SUMMARY:CureDuchenne Workshop: Philadelphia
DESCRIPTION:Join us for a free\, full day workshop focused on improving the quality of life for individuals with Duchenne and Becker Muscular Dystrophy. Insightful presentations on standards of care\, family support\, physical therapy and medical equipment\, research and clinical trials\, and an open house with local resources\, equipment vendors and pharma/biotech representatives. Breakfast and lunch are provided\, travel assistance available for eligible applications.
URL:https://musculardystrophynews.com/event/cureduchenne-workshop-philadelphia/
LOCATION:Sheraton Philadelphia University City Hotel\, 3549 Chestnut St\, Philadelphia\, PA\, 19104\, United States
CATEGORIES:CureDuchenne
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ORGANIZER;CN="CureDuchenne":MAILTO:emilie@cureduchenne.org
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DTSTART;TZID=America/Chicago:20251018T080000
DTEND;TZID=America/Chicago:20251018T160000
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CREATED:20250225T184742Z
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SUMMARY:CureDuchenne Workshop: Omaha
DESCRIPTION:Join us for a free\, full day workshop focused on improving the quality of life for individuals with Duchenne and Becker Muscular Dystrophy. Insightful presentations on standards of care\, family support\, physical therapy and medical equipment\, research and clinical trials\, and an open house with local resources\, equipment vendors and pharma/biotech representatives. Breakfast and lunch are provided\, travel assistance available for eligible applications.
URL:https://musculardystrophynews.com/event/cureduchenne-workshop-omaha/
LOCATION:Courtyard Omaha Bellevue at Beardmore Event Center\, 3730 Raynor Pkwy\, Omaha\, NE\, 68123\, United States
CATEGORIES:CureDuchenne
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ORGANIZER;CN="CureDuchenne":MAILTO:emilie@cureduchenne.org
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DTSTART;TZID=America/Chicago:20260308T180000
DTEND;TZID=America/Chicago:20260311T150000
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CREATED:20260303T152814Z
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SUMMARY:MDA 2026 Clinical and Scientific Conference
DESCRIPTION:The annual MDA Clinical & Scientific Conference brings together leading researchers\, clinicians\, industry experts\, and advocates to share the latest advances in neuromuscular science\, clinical care\, and therapeutic innovation. This premier meeting highlights breakthrough research\, emerging treatments\, and collaborative strategies shaping the future of muscular dystrophy and related neuromuscular diseases.
URL:https://musculardystrophynews.com/event/mda-2026-clinical-and-scientific-conference/
LOCATION:Hilton Orlando\, 6001 Destination Pkwy\, Orlando\, FL\, 32819\, United States
CATEGORIES:MDA
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ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
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