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				<title>opmdassociation posted an update: </title>
				<link>https://musculardystrophynews.com/forums/activity/p/9223/</link>
				<pubDate>Sat, 14 Mar 2026 14:13:37 -0500</pubDate>

				
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				<title>opmdassociation posted an update: The OPMD Association is a 501(c)(3) non-profit [&#133;]</title>
				<link>https://musculardystrophynews.com/forums/activity/p/9216/</link>
				<pubDate>Sat, 14 Mar 2026 14:09:35 -0500</pubDate>

									<content:encoded><![CDATA[<p>The OPMD Association is a 501(c)(3) non-profit advocacy organization established in 2022 and dedicated to raising awareness of Oculopharyngeal Muscular Dystrophy, a genetic, rare, neuromuscular disease. We support the OPMD Community which includes OPMD patients, their families and caregivers by educating the public and governmental officials&hellip;</p>
<p><span class="activity-read-more" id="activity-read-more-9216"><a href="https://musculardystrophynews.com/forums/activity/p/9216/" rel="nofollow"> Read more</a></span></p>
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				<title>crystal-hoshaw became a registered member</title>
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				<pubDate>Thu, 29 Jan 2026 23:17:12 -0600</pubDate>

				
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				<title>Gary replied to the discussion Wheelchair van malfunction during the colder months in the forum Mobility Aids and Medical Equipment</title>
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				<pubDate>Sun, 14 Dec 2025 16:15:04 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://musculardystrophynews.com/forums/forums/topic/wheelchair-van-malfunction-during-the-colder-months/#post-18539"><span class="bb-reply-lable">Reply to</span> Wheelchair van malfunction during the colder months</a></p> <div class="bb-content-inr-wrap"><p>I am very frustrated with my van now because the ramp has not worked right for the last 2 weeks during this bitter cold. I had it in to be repaired this week and again this morning it will not work!</p>
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				<title>robert-macinnis became a registered member</title>
				<link>https://musculardystrophynews.com/forums/activity/p/9113/</link>
				<pubDate>Tue, 12 Aug 2025 19:31:15 -0500</pubDate>

				
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				<pubDate>Tue, 12 Aug 2025 19:31:12 -0500</pubDate>

				
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				<title>Carol became a registered member</title>
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				<pubDate>Mon, 30 Jun 2025 12:35:04 -0500</pubDate>

				
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				<title>Sachin became a registered member</title>
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				<pubDate>Wed, 25 Jun 2025 12:12:28 -0500</pubDate>

				
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				<title>jennifer-oreilly-mott became a registered member</title>
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				<title>ashi became a registered member</title>
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				<pubDate>Thu, 12 Dec 2024 17:53:09 -0600</pubDate>

				
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				<title>melvin376 became a registered member</title>
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				<title>khaled-alquaddoomi became a registered member</title>
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				<title>joeco became a registered member</title>
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				<title>cindylou became a registered member</title>
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				<pubDate>Tue, 15 Oct 2024 12:33:40 -0500</pubDate>

				
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				<title>Durgesh started the discussion Muscular disthrophy in the forum Advocacy Work</title>
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				<pubDate>Fri, 06 Sep 2024 07:41:32 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://musculardystrophynews.com/forums/forums/topic/muscular-disthrophy/">Muscular disthrophy</a></p> <div class="bb-content-inr-wrap"><p>I want some guidance for working as MD person with Government department </p>
<p>I&#8217;m from india</p>
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				<title>ginger became a registered member</title>
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				<pubDate>Fri, 26 Jul 2024 14:48:18 -0500</pubDate>

				
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				<pubDate>Thu, 18 Jul 2024 14:00:12 -0500</pubDate>

				
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				<title>20040317dillyn became a registered member</title>
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