Are the muscle in your hands atrophied? What activities require a lot of work with your hands that you can no longer do now? Some activities that were once enjoyable and fun, such as stitching, painting, fishing, are now difficult. How have you adapted to any muscle changes with your hands?
There is no doubt I see some of that happening with my LGMD2L. I drop things and fumble things more so I have to learn to take my time and be more careful. I also know left arm and hand better so learning to use non dominant hand more.
The biggest thing I’ve noticed when it comes to atrophy in my hands is that I can’t open water or Gatorade bottles hy myself anymore. I have to ask someone else to open it for me, which is somewhat embarrassing. I also struggle with opening my prescription bottles.
I have a hard time opening Gatorade bottle as well when I’m feeling particularly weak and fatigued. I never really noticed any weakness in my hands and arms until middle school. I played guitar for about two years and after I had to give that up I turned to song writing.
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