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As a parent with a child that was recently diagnosed with MD what were you first concerns? Do you recall the things you did after the initial diagnoses?
I have asked my parents before and my dad said that after the initial shock, he tried to do some research. This was back in 2001 so there was limited information. He was upset but luckily enough he was able to contact someone at the FSH Society and spent countless hours on the phone with them. From what I understood they were a great support system and eased some of his concern.
Who did you reach out to after the initial diagnosis? Thank you as always for sharing your stories!
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