Short Bio |
My father was diagnosed with oculopharyngeal muscular dystrophy. He had several brothers and sisters who also had it. We are a family of 6 children. My oldest sister (17 years older than myself) has it. I am the youngest sibling and had a genetic test performed last year when I noticed signs occurring over the past several years. It was positive. I have one other brother who may have the disease but does not want to get tested.
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How long have you or the person that you are caring for had MD? |
Confirmed in 2020
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