Base

Name

Lisa Cyr

Nickname

lisa-cyr

Year of Birth

07/26/1963

Gender

Female

Location

Old Orchard Beach, Maine

Relationship

Patient

Short Bio

My father was diagnosed with oculopharyngeal muscular dystrophy.  He had several brothers and sisters who also had it.  We are a family of 6 children.  My oldest sister (17 years older than myself) has it.  I am the youngest sibling and had a genetic test performed last year when I noticed signs occurring over the past several years.  It was positive.  I have one other brother who may have the disease but does not want to get tested.

How did you hear about us?

Physician

How long have you or the person that you are caring for had MD?

Confirmed in 2020

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