• All Discussions
•  Danielle "Dani" Liptak

  Rare Disease Day 2023

  Gail Sullivan replied 9 months, 1 week ago 2 Members · 1 Reply

  Advocacy Work
•  Danielle "Dani" Liptak

  Cost of Living with MD

  Gail Sullivan replied 9 months, 2 weeks ago 2 Members · 3 Replies

  Mobility Aids and Medical Equipment
•  Danielle "Dani" Liptak

  Ear, Nose, Throat and MD

  Annette Murphy replied 1 year ago 3 Members · 2 Replies

  Diagnosis​ ​Info​ ​and​ ​General​ ​Questions
•  Danielle "Dani" Liptak

  Arm Numbness

  Emily Carfagna (wife) replied 1 year, 1 month ago 4 Members · 3 Replies

  Adults​ ​With​ ​Muscular Dystrophy
•  Danielle "Dani" Liptak

  Disability/ADA Lawyers

   Danielle "Dani" Liptak replied 1 year, 2 months ago 1 Member · 0 Replies

  Mobility Aids and Medical Equipment
•  Danielle "Dani" Liptak

  Caregiver Appreciation

  Danielle "Dani" Liptak replied 1 year, 2 months ago 2 Members · 4 Replies

  Member Spotlight
•  Danielle "Dani" Liptak

  National Registry for Your Type of MD?

   Danielle "Dani" Liptak replied 1 year, 2 months ago 1 Member · 0 Replies

  Science, Research, Clinical Trials
•  Danielle "Dani" Liptak

  Self Defense for People with Disabilities

  Danielle "Dani" Liptak replied 1 year, 2 months ago 2 Members · 2 Replies

  Adults​ ​With​ ​Muscular Dystrophy
•  Danielle "Dani" Liptak

  Car Cane

  Danielle "Dani" Liptak replied 1 year, 3 months ago 6 Members · 11 Replies

  Mobility Aids and Medical Equipment
•  Danielle "Dani" Liptak

  Virtual MDA Walks

  Danielle "Dani" Liptak replied 1 year, 3 months ago 3 Members · 5 Replies

  Advocacy Work
•  Danielle "Dani" Liptak

  Voice Activated Items in the Home

   Danielle "Dani" Liptak replied 1 year, 3 months ago 1 Member · 0 Replies

  Tips, Tricks, and Advice
•  Danielle "Dani" Liptak

  What can grief do to your body?

  Danielle "Dani" Liptak replied 1 year, 4 months ago 4 Members · 6 Replies

  Mental Health and Positivity
•  Danielle "Dani" Liptak

  Thanksgiving Past and Present

  Tracy Myall replied 1 year, 4 months ago 3 Members · 3 Replies

  Events and Activities
•  Danielle "Dani" Liptak

  Storing food to take places

  Danielle "Dani" Liptak replied 1 year, 4 months ago 2 Members · 2 Replies

  Tips, Tricks, and Advice
•  Danielle "Dani" Liptak

  After School Activities

   Danielle "Dani" Liptak replied 1 year, 4 months ago 1 Member · 0 Replies

  Young Adults With ​MD
•  Danielle "Dani" Liptak

  Making Mobility Devices More Appealing

  Danielle "Dani" Liptak replied 1 year, 5 months ago 3 Members · 4 Replies

  Mobility Aids and Medical Equipment
•  Danielle "Dani" Liptak

  Back To School Stress

   Danielle "Dani" Liptak replied 1 year, 5 months ago 1 Member · 0 Replies

  Young Adults With ​MD
•  Danielle "Dani" Liptak

  Best Time to Take Vitamins

   Danielle "Dani" Liptak replied 1 year, 5 months ago 1 Member · 0 Replies

  Tips, Tricks, and Advice
•  Danielle "Dani" Liptak

  Dealing With Cracked or Damaged Sidewalks

  Danielle "Dani" Liptak replied 1 year, 6 months ago 2 Members · 6 Replies

  Adults​ ​With​ ​Muscular Dystrophy
•  Danielle "Dani" Liptak

  Accused of faking/ milking disability

  Leah Leilani replied 1 year, 6 months ago 5 Members · 7 Replies

  Mental Health and Positivity
•  Danielle "Dani" Liptak

  Thread on Reddit About Disability

   Danielle "Dani" Liptak replied 1 year, 6 months ago 1 Member · 0 Replies

  Mental Health and Positivity
•  Danielle "Dani" Liptak

  The PACT FSHD Registry

   Danielle "Dani" Liptak replied 1 year, 6 months ago 1 Member · 0 Replies

  Diagnosis​ ​Info​ ​and​ ​General​ ​Questions
•  Danielle "Dani" Liptak

  Fulcrum’s Phase 3 Clinical Trial Has Launched

   Danielle "Dani" Liptak replied 1 year, 6 months ago 1 Member · 0 Replies

  Science, Research, Clinical Trials
•  Danielle "Dani" Liptak

  World FSHD Day

  Danielle "Dani" Liptak replied 1 year, 7 months ago 2 Members · 2 Replies

  Advocacy Work