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My son Jaxon was diagnosed with Duchenne Muscular Dystrophy at the early age of 15 months old. From 6 months of age to 15 months old countless tests & blood work had to be performed to determine what was going on. After several trips all over Denver and Colorado Springs, we finally had it confirmed after genetic testing that Jaxon tested positive for Duchenne Muscular Dystrophy. I was then tested right away to determine if I was a carrier of the gene. My results came back right away and it was confirmed that I am the carrier that passed this onto him. He is missing exons 49-54. He has been on daily steroids since the age of 2 and has been wearing leg splints since age 2.  He is seen every 4-6 months in Virginia at the Children’s Hospital of the Kings Daughters. He is currently taking the steroid called Emflaza as well as liquid Vitamin D. He is still ambulatory and a very active boy. He gets tired more often and has a harder time going up the stairs. He is a very happy child and full of life. Always smiling and the light of my life.