Kevin Schaefer

Dear Forum Members,

Muscular Dystrophy News Today is dedicated to meeting the informational needs of the community. We are always striving to collect information to serve you better! Please take a moment to complete our” 1 ” question poll below. This will help us better tailor the information we publish as it pertains to muscular dystrophy…[Read more]

Hey everyone! Hope you all had a safe and relaxing weekend. For those here in the U.S., I wish you all a good Memorial Day.

So, as states and other places around the world begin to reopen, I wanted to get your thoughts. I don’t want to start anything political here. Rather, I’m just curious if anyone here feels comfortable going out som…[Read more]

So I’m sure you’re all pretty tired of hearing about COVID. Paying attention to the news right now is exhausting.

However, I did want to share this column about COVID-19 and post-traumatic growth. The author, Brianna Albers, is a writer for one of our sibling sites. She’s been writing about mental health coping mechanisms, speci…[Read more]

Hey everyone! Hope you all had a safe and relaxing weekend.

Today, I wanted to start a conversation about setting personal goals. Obviously, it’s an unusual time to even think about this subject. Between the COVID-19 pandemic and just trying to stay healthy, most of us aren’t focused on the future.

Still, I actually think it’s a great…[Read more]

Since the COVID-19 pandemic is having a major impact on our healthcare services, we have to approach medical appointments differently than before. TeleMed and other virtual services could become the new norm. Still, some appointments and procedures need to be in-person. It raises questions about how we can best approach appointments with our…[Read more]

Hey everyone! Hope you all had a safe and relaxing weekend.

I wanted to share this book with you all. This is a collection of essays from the New York Times disability series. The book’s contributors include people living with quadriplegia, chronic illnesses, blindness, and more. The idea is to give people with a plethora of visible and i…[Read more]

Hey everyone! Hope you’re all having a good week.

Check out this video on the SMA News Today YouTube channel (one of our sister sites). In this special edition episode, I demonstrate my new at-home exercise routine.

I started using my electric ceiling lift as a weight to push and pull…[Read more]

Hey everyone! Hope you all had a safe and relaxing weekend.

I wanted to ask if anyone here does online therapy. With all of the stress and anxiety in the world right now, it’s as good a time as any to focus on mental health. And since we’re all on lockdown, online therapy is a great alternative to in-person appointments.

There’s one s…[Read more]

Hey everyone! Happy Friday!

I wanted to share this podcast episode with you all. Over on our sister site SMA News Today (which I help manage), our very own Ralph Yaniz guest-starred on our podcast. Check out Ralph’s column here if you haven’t already.

In this podcast, we spent the second half talking about the new Netflix doc…[Read more]

Hey everyone! Hope you’re all staying safe and healthy.

Today, I wanted to give a shoutout to all of the caregivers in this community. Especially in a time like this, I want to express my gratitude to everyone who continually gives and sacrifices to care for a loved one with MD.

I recently came across an article on the importance of s…[Read more]

Hey everyone! Congrats on making it through another week of quarantine.

So I wanted to ask you all about using TeleMed for medical services. TeleMed is a popular resource for live medical answering services for patients and healthcare providers. Especially with the COVID-19 pandemic, I was wondering how many of you are using TeleMed for…[Read more]

Hey everyone! Congrats on making it through another week of quarantine.

So, I wanted to ask you all about how you’re managing caregivers during this time. For me, I live with my parents, and my CNA has been with me for six years. He’s still coming, and my Mom handles my care on the weekends. Normally my Dad does a lot, but right now we’…[Read more]

Hey everyone! Hope you’re all staying safe out there.

So I wanted to ask you all about staying fit during the COVID-19 pandemic. I know it’s tough for a lot of us, especially when we can’t go to PT and regular appointments right now (I’m in this boat). Plus, binge-eating is tempting when you’re stuck at home (don’t look at me).

Sti…[Read more]

Hey everyone! Hope you all had a safe and relaxing weekend.

So I just wanted to do a mental health check-in. Obviously it’s a stressful time, but how’s everyone doing mentally and emotionally? For me, I’m just trying to take things day by day. I’m keeping a lockdown journal, reading, watching movies, calling friends and family, and going o…[Read more]

Hey everyone! We made it through another week.

I wanted to share this video with you all that I came across a few months ago. This is a fascinating video, in which a group of people with disabilities discuss topics like ableism, dating, and living with a disability. The idea is to show that within disability communities, people think…[Read more]

Hey everyone! Hope you’re all staying safe, (relatively) sane, and healthy out there.

Check out Hawken’s latest column here. In it, he shares his thoughts on finding a silver lining in the midst of the COVID-19 pandemic. He writes about the benefits of virtual socializing, and how he doesn’t have to worry about social events that req…[Read more]

Hey everyone! Hope you all had a safe and relaxing weekend.

So since we’re all stuck at home right now, I was wondering if anyone had any good podcast recommendations. Since I work from home anyway, I listen to a lot of podcasts during the day. My favorite is called Beautiful Anonymous, a conversational show hosted by comedian Chris G…[Read more]