Layla

Have you ever been surprised by a person’s knowledge about disability, accessibility, or your type of MD? Did you feel comfortable asking them where did they learn about it and why?

I have only met one or two people that were not disabled that were well educated about disability and muscular dystrophy. One was a doctor that I met when I was out…[Read more]

I live with my parents, so being told what to do by them is a given. It has helped set boundaries and remind them that I am 31 and have to make decisions for myself even if it seems like the wrong thing. My parents have recently been very nervous about the skyrocketing COVID cases and do not like when I go out at all. The frustrating thing is that…[Read more]

I have broken two glass things today and realized if my parents weren’t on the other side of the house and I couldn’t call them for help, I would have a real hard time cleaning up the glass. I worry especially since I have a cat, and she could get glass in her paws.

If you drop and break something glass or otherwise, how do you clean it up if you…[Read more]

Are you going anywhere that requires a negative Coronavirus test? Did you administer the test yourself, or did someone else do it for you? Was the test inside or outside in your car? Did you have any side effects from the test, such as pain in your eye or nose? How long did you have to wait for the results?

This week is the American Holiday of Thanksgiving. Leah and I will be off this Thursday and Friday for the holiday. We just wanted to let you all know that it might take longer to respond during that time. Thanks for understanding, and we hope you all have a great week and stay safe!

Has your state or country gone back into lockdown? Were you surprised to see such an increase in COVID cases, or did you think the wintertime would bring more cases? What have you thought about how Coronavirus has been handled where you live? Are you more prepared now than at the beginning for another lockdown? Will you or have you stocked up on…[Read more]

Everyone throughout their life will get a scar or two. Do you have many scars? Are any of them MD related? How have you taken care of your scars or do you just leave them be? What stories do you have to go with any scars?

I have a lot of scars on my knees from falling but the stories are usually fun, like when I totally wiped out roller blading!…[Read more]

During the lockdown, I became more of a tea drinker! I found dealing with a teapot to be difficult and cumbersome. I saw online some different teapots, but I thought the Uccello Tipping Kettle was the coolest! Now it is a lot of money, but there have had some accidents with boiling water, and sometimes peace of mind when pouring scalding hot water…[Read more]

Depending on how I sleep, I end up drooling. Sometimes it isn’t very pleasant, and occasionally it can affect the skin around my mouth. I don’t know if there are things that can be done about it, but I am curious if others with MD deal with this issue? Do you have special drool-proof pillowcases? Have you found something that works to reduce drool…[Read more]

I had to take my cat to the vet and do that, and I need assistance from my father to help me get her in the crate and transport her to the car. My cat was recently diagnosed with diabetes, which is common in older cats. I was very anxious and felt guilty about the whole situation. The vet wanted one person to learn how to administer the medication…[Read more]

I recently saw the Netflix series, The Queen’s Gambit. It was a great story, and I enjoyed it very much! If you haven’t seen it, I highly recommend it.

Do you play chess? Have you ever competed in a chess competition? How about checkers? Both games require knowledge and practice. I wish I had learned when I was younger because it seems like a…[Read more]

I came across a post in my MD group today from a woman that recently broke up with her significant other. She posed questions about whether or not he has a right to take away custody from her due to her MD. I do not know the legality of that situation, but I believe that one should not have their parental skills questions just because they have a…[Read more]

Do you have a favorite clothing brand? How long have you been shopping with them? How has your choice of brands changed over the years? Did you go to malls and shop store brands, or did you prefer catalogs, or now, online? Do you have a brand that you trusted, but they have become better or worse over the years? What makes you want to spend your…[Read more]

Have you been following the presidential election in the United States? Have you been trying to not focus too much on negativity? If you feel stressed how have you handled it? Are you invested in the election or do you think that no matter the outcome you will be okay? Do you have more concern for other groups of people living in the United States?

Accidents happen all the time. Some worse than others. This past weekend I asked my friend to drive me home. I was tired and didn’t feel like I could transfer to the driver’s seat. She stopped at a stop sign and when she turned, cut the corn to close and damaged the door of my van. I had to wait till Monday to get it fixed. She of course offered…[Read more]

Did you know that Tommy Hilfiger in 2016 started an adaptive clothing line for children and has since moved into adult adaptive clothing? Do you need help getting dressed and wished there was a way to dress more independently?

Tommy Adaptive is an innovative collection designed to look good for work, weekends, and being active. It was also…[Read more]

If you gave out candy this year or have people that went and trick or treated in your house, what do you do with all the leftover candy? I think it can be fun to indulge on holidays, although it is tricky due to my diabetes. I live in a place that doesn’t have any trick or treaters, but many stores and businesses have put out leftover candy, which…[Read more]

Have you been attending school online since the pandemic started? How has that transition been? What has been the easiest and most difficult part of online learning?

Back in 2013, I started taking online classes. I used to be very apprehensive about taking classes online. I thought I wouldn’t focus and that I needed an instructor there…[Read more]

I live in a historic town, and several ghost tours go through downtown Wilmington, NC.  Part of the ghost tour isn’t accessible to me, but I am sure if I had a big enough group or a small personal group, the tour could be modified. Have you been on ghost tours? Do you believe in the supernatural or spirits? Do you like ghost stories?