Base

Name

Lexi Pappas
Nickname

lexi-pappas
Year of Birth

1994
Gender

Female
Relationship

Patient
Short Bio

Hey! My name is Lexi Pappas and I am living with FSHD. I was diagnosed with FSHD at approx 12 y/o. I love to create videos, whether it be documentaries, montages, even YouTube videos (I am now doing disability related vlogs on there @lexipappas).
How did you hear about us?

Dani Liptak
How long have you or the person that you are caring for had MD?

13 years
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