Log In or Register to Join The Conversation!
  • Leah,

    I had an adult late in life onset of FSHD. I am a Mechanical Engineer and was able to fully function in my career until I began to notice obvious signs of  headaches, muscle pain, poor posture, and fatigue. I knew something was wrong and it was a scary process of doctors to finally get my diagnosis. I was shocked at the news and my family…[Read more]

  • Mark Hopkins posted a new activity comment 1 month, 1 week ago

    Hey Leah, Thanks for welcoming me to the site. I look forward to talking with everyone. I am an unusual diagnosis since I was not diagnosed until late in my life. Although I did notice problems with range of motion and shoulder muscle pains in my late teens. I have FSHD and had a severe onset at age 61. So, I hope “an old guy” can fit in…

    [Read more]

  • Hey ! How do I put my picture on my profile?

    • Hi Mark! If you’re doing this on your phone tap the + bellow the generic profile image, tap on Profile, tap on Change Profile Picture, scroll down and hit Select Files and then Photo Library. This will access your phones photos Select your preferred photo and done, them Upload Photo. This should change your profile photo. If you get stuck l…

      [Read more]

    • You will have to crop your image. Once you’ve don’t that tap Crop Photo and it will automatically make that your profile picture. Hope this helped
    • Mark Hopkins posted a new activity comment 1 month, 2 weeks ago

      Hello Danielle,
      Thank you for the warm reception. First time here and will need to learn to navigate my way around.
      • Mark Hopkins became a registered member 1 month, 3 weeks ago

        • Welcome, Mark! My name is Dani Liptak. I am a forum moderator along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any…[Read more]

        • Hi there Mark and welcome to the Muscular Dystrophy Forums. Dani and I are happy to have you as a part of this community.

          Before I tell you about the forum, I would like to introduce myself. My name is Leah Leilani and I am a co-moderator for the forums alongside Dani Liptak. I was born with a rare form of Muscular Dystrophy called…

          [Read more]

          • Hey Leah, Thanks for welcoming me to the site. I look forward to talking with everyone. I am an unusual diagnosis since I was not diagnosed until late in my life. Although I did notice problems with range of motion and shoulder muscle pains in my late teens. I have FSHD and had a severe onset at age 61. So, I hope “an old guy” can fit in…

            [Read more]

      Copyright © 2017-2020 All rights reserved.

      CONTACT US

      We're not around right now. But you can send us an email and we'll get back to you, asap.

      Sending
      or

      Log in with your credentials

      or    

      Forgot your details?

      or

      Create Account