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  • Mark Hopkins became a registered member 4 months, 3 weeks ago

    • Welcome, Mark! My name is Dani Liptak. I am a forum moderator along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any questions in general about the forums. Enjoy the day, and thank you again for joining the Muscular Dystrophy forum!

    • Hi there Mark and welcome to the Muscular Dystrophy Forums. Dani and I are happy to have you as a part of this community.

      Before I tell you about the forum, I would like to introduce myself. My name is Leah Leilani and I am a co-moderator for the forums alongside Dani Liptak. I was born with a rare form of Muscular Dystrophy called Mitochondrial Myopathy and wasn’t diagnosed until the age of 9.

      Here at the MD Forums, we are like a support group, sharing experiences, giving advice and generally discussing life with MD. Don’t hesitate to join in on any of our many forum topics. This a safe and judgment free zone. If you have any questions, want Dani and I to cover a specific topic or have any critiques on how we can improve the forums please let us know by private messaging either one of us on our profiles.

      Wishing you a lovely day,
      ~Leah

        • Hey Leah, Thanks for welcoming me to the site. I look forward to talking with everyone. I am an unusual diagnosis since I was not diagnosed until late in my life. Although I did notice problems with range of motion and shoulder muscle pains in my late teens. I have FSHD and had a severe onset at age 61. So, I hope “an old guy” can fit in here. I can certainly discuss my progress and therapy’s I have received.
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