Base

Name

Mary

Nickname

mary

Year of Birth

1964

Gender

Female

Location

Massena, ny

Relationship

Patient

Short Bio

After living 58 years with an unknown type of MD, I have finally been diagnosed with Facioscapulohumeral MD. My mother’s mother had it, my mother and 1 of her sisters had it and 2 of my 4 brothers have it. One sibling has passed it on to the next generation.
It was apparent in our family, at the age a baby would hold their head up or roll. Things were delayed, but at different intensities for all of us. I spent my life trying to hide it. I was pretty good at figuring out excuses to avoid having people see my obvious weaknesses, until mid-life. Now I can’t hide it. I’m trying to learn how to live my best life now.

How did you hear about us?

MuscularDystrophyNews.com

How long have you or the person that you are caring for had MD?

All my life

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