Base

Name

Janee’ Sconiers

Nickname

janee-sconiers

Year of Birth

11/16/1962

Gender

Female

Location

Florida

Relationship

Patient

Short Bio

I’m a 56 yr. old who’s symptoms began 12 years ago. My oldest brother and I have a form of LGMD still no subtype. NIH and now Broad Inst. have all my medical history and fingers closed maybe I will have a confirmed diagnosis soon. My middle brother has no muscle issues. I walk with a walking stick and cane for distance, around the home and flat surfaces I’m ok. My walking has worsen this year. I hope and seek for a cure for us not just a treatment. Wonderful progress is being made, for me, it can’t come soon enough. Here’s to a cure for us all and an end to MD.

How did you hear about us?

MDA

How long have you or the person that you are caring for had MD?

All my life apparently, symptoms 12 years ago.

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