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Was diagnosed in 1997 (40 yrs old) with a “quadriceps myopathy”.  Was confirmed as LGMD 2L in 2017 via MDA DNA test.  My disease has been a slow progression.  I lost my ability to walk about 3 yrs ago and get around using electric mobility scooters.  I have stair lifts at home.  Will be looking for a single floor home next spring.  I have multiple tendon/ligament tears due to falls over the years.  (Both shoulders, right wrist, left ACL, etc.  I can’t re-hab so surgery is apparently not an option. I’m in a lot of pain – shoulders and arms – since I stress them getting up and down from the scooters.  Doctors are hesitant about prescribing pain meds due to the “opiod crisis”.  I still work full time…2 1/2 yrs away from retirement.  Loading and unloading my scooter is a little bit harder every day.  Quality of life has been diminished for sure.