Muscular Dystrophy News Forums | Amir | Activity https://musculardystrophynews.com/forums/members/shakiba/activity/ Activity feed for Amir. Thu, 23 Apr 2026 15:46:51 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 46693b25742a6cb908b56ebb135695e4 Amir replied to the discussion How much hope is healthy in the forum Adults​ ​With​ ​Muscular Dystrophy https://musculardystrophynews.com/forums/forums/topic/how-much-hope-is-healthy/#post-14134 Fri, 25 Oct 2019 17:25:14 -0500 Reply to How much hope is healthy

Great questions.

I have FSHD and I do believe there may be a treatment for FSHD in 7-10 years.

I think hope is good but too much hope could be harmful if you put your life on hold and just wait for a cure and don’t do anything about your condition.

I go swimming twice a week and do physiotherapy once a week even due it is not easy but it… Read more

]]> 15bd55e3cdc343404f5af1e90e8165c0 Amir posted a new activity comment https://musculardystrophynews.com/forums/activity/p/2926/#acomment-2965 Tue, 22 Oct 2019 16:56:21 -0500 Thanks Dani 🙂

    In reply to - Amir became a registered member ]]>         4595d7f8b228377c973250443760f07a Amir changed their profile picture https://musculardystrophynews.com/forums/activity/p/2931/ Sat, 19 Oct 2019 17:41:32 -0500 0 88fa997f19ea2e6a2738e6ef023f70c9 Amir replied to the discussion Using compression socks/sleeves to reduce swelling in the forum Mobility Aids and Medical Equipment https://musculardystrophynews.com/forums/forums/topic/using-compression-socks-sleeves-to-reduce-swelling/#post-14085 Sat, 19 Oct 2019 17:39:04 -0500 Reply to Using compression socks/sleeves to reduce swelling

    I have swelling in my feet and have been using compression socks for 2 years now.

    they are very effective and helpful. Just make sure you get the right pressure and high quality ones which are more expensive but definitely worth it.

    ]]>         c6825f569973dc6e79593009b5a5e574 Amir became a registered member https://musculardystrophynews.com/forums/activity/p/2926/ Sat, 19 Oct 2019 13:57:28 -0500 2