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Here’s How I Decorated My Wheelchair This Christmas
columns, You, Me and MD - a Column by Leah LeilaniIn my family, almost every holiday deserves decorations. Even Valentine’s Day is celebrated, with heart stickers on our bathroom ... Read more -
Potential DMD Therapy WVE-210201 Shows Positive Phase 1 Safety Results
NewsWVE-210201, an exon 51 skipping therapy, has shown positive safety and tolerability results in a Phase 1 clinical trial in boys ... Read more -
Budding Journalist Hawken Miller Offers Advice on Living With Duchenne
NewsAt 21, Hawken Miller certainly doesn’t look like a typical Duchenne muscular dystrophy patient. For one thing, unlike most ... Read more -
Coping with Duchenne: Parents Swap Stories at ‘Futures’ Conference
NewsUntil her son, Will, was diagnosed with Duchenne muscular dystrophy as a 7-year-old, speech pathologist Tiffany Cook had never ... Read more -
Seasonal Cooking with Mito
columns, You, Me and MD - a Column by Leah LeilaniThe Christmas season has drifted in, and with it come mouth-watering kitchen smells. It’s time to mix the cookie ... Read more -
UVA Children’s Hospital Recognized for Expert Duchenne Care by Parent Project MD
NewsThe University of Virginia (UVA) Children’s Hospital has been named a Certified Duchenne Care Center by Parent Project Muscular Dystrophy (PPMD), making it the ... Read more -
Muscular Dystrophy UK Partners to Make Toilets on England’s Roadways More Accessible to All
NewsHoping to make travel less difficult throughout England for disabled motorists, including those with muscular dystrophy, Muscular Dystrophy UK and ... Read more -
Neurologist Brenda Wong Heads New Specialized Duchenne Clinic at UMass
NewsFor nearly half a year, Brenda Wong, MD, has led New England’s first and only interdisciplinary clinic devoted exclusively ... Read more -
Small Ways to Get in the Holiday Spirit
columns, You, Me and MD - a Column by Leah LeilaniThe holidays can be a tumultuous time. Advertisements would have us believe that the ups and downs of life ... Read more -
Taiho’s TAS-205 May Represent New Therapy Option for DMD, Phase 1 Data Shows
NewsEarly safety and efficacy data from a Phase 1 trial suggest that Taiho Pharmaceutical’s investigational compound TAS-205 may hold ... Read more -
West Virginia Mom of Duchenne Boy Struggles to Make Ends Meet
NewsLike many mothers of boys with muscular dystrophy, Deborah Hall hasn’t had an easy life. Hall, the daughter of ... Read more -
Controlling BMI and Blood Pressure Might Slow Heart Damage in DMD Patients, Study Suggests
NewsBody mass index (BMI) and blood pressure are modifiable factors that could help to slow heart deterioration in patients ... Read more
