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SUMMARY:Scientific & Family (SciFam) Conference
DESCRIPTION:SciFam is a four day\, in-person\, neuromuscular conference for stakeholders in congenital muscular dystrophy\, nemaline myopathy\, and titinopathy. This event is being hosted by Cure CMD\, A Foundation Building Strength for Nemaline Myopathy and Team Titin. Please email scifam@curecmd.org for more information.
URL:https://musculardystrophynews.com/event/scientific-family-scifam-conference/
LOCATION:Hilton Philadelphia at Penn’s Landing\, 201 S Christopher Columbus Bl\, Philadelphia\, PA\, 19106\, United States
CATEGORIES:Cure CMD
ORGANIZER;CN="Cure CMD":MAILTO:info@curecmd.org
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SUMMARY:Cure CMD Webinar: Recreational Sports Opportunities
DESCRIPTION:Finding your place in sports can be challenging for those living with CMD. Learn how to successfully start your\nown local adaptive league with peers just like you. We’ll share exciting opportunities to create one-of-a-kind memories with an athlete\, team\, or sports organization for those living with a rare disease. Please email outreach@curecmd.org for more information.
URL:https://musculardystrophynews.com/event/cure-cmd-webinar-recreational-sports-opportunities/
CATEGORIES:Cure CMD
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ORGANIZER;CN="Cure CMD":MAILTO:info@curecmd.org
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