Muscular Dystrophy News

2025 MDA Clinical & Scientific Conference
2025-03-16 07:00 - 2025-03-19 12:00 (America/Chicago) | Hilton Anatole, 2201 N Stemmons Freeway, Dallas, TX, 75207, United States
Join us in shaping the future of neuromuscular disease research and care at the MDA’s 2025 Clinical and Scientific Conference. The record number of participants from around the globe at our 2024 conference underscores the vital role our gathering plays in advancing the field of neuromuscular medicine and bringing ever more powerful therapies to people living with neuromuscular disease. No other conference in our space commands the attention and engagement of clinicians, researchers, allied health professionals, industry, and patient advocates quite like ours.

Our collective efforts over many years have brought us into a prolific era for drug development. This Era of Treatments has been marked by groundbreaking discoveries and innovative therapies that bring new hope to our community. These include major advances in genetic therapies, treatments for ultrarare conditions and parsing emerging data points that help us visualize new paths forward for ending neuromuscular disease. The value of being part of this conference is unparalleled. At the MDA Clinical and Scientific Conference, you and your organization gain visibility and alignment with cutting-edge research and compassionate care, and benefit from discussions about the latest scientific advancements, collaborative opportunities, and opportunities to shape the future of neuromuscular medicine. The momentum we are building is extraordinary. The synergy of our diverse expertise and shared dedication propels us towards unprecedented achievements and meaningful change for children and adults pursuing longer, stronger, more independent lives. Join us and be part of a global movement that continues to push the boundaries of what is possible.
If you are a patient or caregiver interested in attending the in-person conference or an MDA volunteer interested in attending virtually, please complete this form before registering: https://web.cvent.com/event/a0e62898-47b9-4b88-88b8-aca631f6a834/register?RefId=2025+Attendee+Registration+Email&rp=84e6d5ae-6b69-4e5c-b84d-614504db238c

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MDA Engage Symposium: Dallas, TX
2024-11-09 10:00 - 15:30 | Renaissance Dallas Hotel, 2222 N Stemmons Fwy, Dallas, TX, 75207, United States
This Engage Symposium will offer sessions on amyotrophic lateral sclerosis (ALS), Duchenne muscular dystrophy (DMD), Becker muscular dystrophy (BMD), myotonic dystrophy, ultra-rare neuromuscular diseases, as well as research and clinical trial updates for all diagnoses. There will also be daily living sessions that are relevant for people living with all types of neuromuscular disease such as nutrition, exercise, and transitioning to adulthood. Attendees will also have the chance to connect socially with others in the community and browse our Community Resource Hall to learn about other organizations and businesses supporting the neuromuscular community.

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MDA Engage Symposium: Irvine, CA
2024-11-09 10:00 - 15:30 | The Beckman Center, 100 Academy Way, Irvine, CA, 92617, United States
This Engage Symposium will offer sessions on myasthenia gravis (MG), Pompe disease, spinal muscular atrophy (SMA), and myositis, as well as research and clinical trial updates for all diagnoses. There will also be daily living sessions that are relevant for people living with all types of neuromuscular disease such as navigating insurance, mental health, and exercise. Attendees will also have the chance to connect socially with others in the community and browse our Community Resource Hall to learn about other organizations and businesses supporting the neuromuscular community. MDA is pleased to have Dr. Tahseen Mozaffar, neurologist at UC Irvine chairing this Engage Symposium.

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MDA Engage Symposium: Stanford, CA
2024-11-02 10:00 - 15:30 | Li Ka Shing Learning and Knowledge Center- Paul & Mildred Berg Hall, 291 Campus Drive, Stanford, CA, 94305, United States
This Engage Symposium will provide updates on all neuromuscular diseases including Duchenne muscular dystrophy (DMD), Becker muscular dystrophy (BMD), amyotrophic lateral sclerosis (ALS), spinal muscular atrophy (SMA), myasthenia gravis (MG), limb-girdle muscular dystrophy (LGMD), myotonic dystrophy (DM), Charcot-Marie-Tooth disease (CMT), Pompe disease, Lambert-Eaton myasthenic syndrome (LEMS), Friedreich Ataxia (FA), facioscapulohumeral muscular dystrophy (FSHD), and several others. Attendees will also have the chance to connect socially with others in the community and browse our Community Resource Hall to learn about other organizations and companies supporting the neuromuscular community.

MDA is pleased to have Dr. John W. Day, neurologist at Stanford University chairing this Engage Symposium.

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MDA Engage Symposium: Atlanta, GA
2024-10-05 10:00 - 15:00 | Emory Conference Center Hotel, 1615 Clifton Road, Atlanta, GA, 30329, United States
This Engage Symposium will offer sessions on amyotrophic lateral sclerosis (ALS), spinal muscular atrophy (SMA), Duchenne muscular dystrophy (DMD), Becker muscular dystrophy (BMD), research and clinical trial updates for all diagnoses, as well as sessions on daily living such as nutrition, exercise, and transitioning to adulthood. Attendees will also have the chance to connect socially with others in the community and browse our Community Resource Hall to learn about other organizations and businesses supporting the neuromuscular community. MDA is pleased to have Dr. Jun Ho Kim from Children’s Hospital of Atlanta and Dr. Jonathan Glass from Emory University co-chairing this Engage Symposium.

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