• My life with a rare disease

    Posted by leah-leilani on February 27, 2019 at 5:05 pm

    Today happens to be rare disease day. My form of Muscular Dystrophy is known to be one of the rarest forms. It has brought many challenges into my life and it’s hard to not have many people that truly understand what my life is like. 

    Although my body has limits, there are many good things that come from my disease. It has shaped me to be the strong woman I am today. My disease has made more appreciative of life and love. My life is not dull because of my disease. I live a very happy and adventurous life with my challenges and limitations. 

    Are you doing anything to celebrate your life with a rare disease today? What sort of positive things have come your way because of your disease? 

    replied 5 years, 1 month ago 1 Member · 0 Replies
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