I have an ambitious bucket list for someone who needs help with almost everything physically. I want to watch Chelsea play at Stamford Bridge, their home stadium in West London, preferably on a Champions League night. I’d love to write my memoir and pursue a master’s degree in economics, systems…
Discussion
Since I was 6 years old, I’ve been living with the impact of having Duchenne muscular dystrophy. When I was a kid, I loved building with Legos. I liked taking things apart and figuring out how to put them back together. If there were electronics in the house, I…
Discussion
The Muscular Dystrophy Association (MDA) is hailing a recent U.S. federal court ruling that blocks, at least for now, the implementation of new restrictions that would have made it harder for many people with disabling conditions such as muscular dystrophy to qualify for Medicaid, the government-run program that…
Discussion
Two interconnected themes — community and hope — dominated the conversations at a recent gathering of people living with neuromuscular diseases. Lily Sander, MDA National Ambassador, speaking at MDA Engage: Dallas. (Photo by Tara Haelle) Lily Sander, national ambassador for the Muscular Dystrophy Association (MDA), hit on those…
Discussion
One of the greatest experiences of my life is raising children and watching them grow. My husband, Jason, and I share seven children: Lexi, 25; Max, 20; Chance, 19; Rowen, 17; Charlie, 15; Mary, 12; and Callie, 4. I have witnessed many beautiful moments in my parenting journey. In my…
Becoming educated and informed about muscular dystrophy is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your muscular dystrophy journey.
There is no cure for muscular dystrophy yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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