In recognition of Muscular Dystrophy Awareness Month in September, the Muscular Dystrophy Awareness Month campaign features a series of stories highlighting the real-life experiences of people affected by muscular dystrophy, written in their own words. Follow us on Facebook, Instagram, or…
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People living with neuromuscular diseases and their families should help shape new treatments from the very start, rather than weighing in only after key decisions are made, according to experts and community members who spoke on a Sept. 26 panel at the MDA Engage: Chicago symposium. The panel, “…
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I share seven children with my husband, Jason, including three sons who have Duchenne muscular dystrophy (DMD): Max, 20, Rowen, 17, and Charlie, 15. Most of my columns talk about caregiving and my sons with DMD. However, in our large family, many other dynamics are at play, including the…
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A protein-rich diet was associated with less body fat and better quality of life among adults with Becker muscular dystrophy (BMD), a small study in the U.K. found. While the study didn’t show that eating more protein would reduce body fat or improve quality of life, the findings “support…
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On Sept. 6, I attended the launch of ReadSG at Singapore’s National Library to support my girlfriend, Amanda Yip. ReadSG is a five-year national movement by the National Library Board, Singapore’s public agency for libraries and archives, that encourages people to make reading an everyday habit, starting with…
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An immune signaling pathway involving type I interferon (IFN-I) may be a potential therapeutic target for muscle damage in people with myotonic dystrophy type 1 (DM1), a new study suggests. An examination of immature muscle cells from children with DM1 found that increased IFN-I signaling was associated with stress…
Becoming educated and informed about muscular dystrophy is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your muscular dystrophy journey.
There is no cure for muscular dystrophy yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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