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    • #15457
      MD forums Moderator
      Participant

       

      A study in 80 LGMD2i patients will use twice yearly clinical exams to better understand disease course, help with treatments, and validate a biomarker. Read more about the research here.

      What do you think of this news?

    • #15462
      Ralph Yaniz
      Participant

      This is good, and very important. I founded the LGMD2L Foundation and we maintain a registry. But we haven’t reached this level yet. I would love to look for partnerships to do something like this.

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