Base

Name

Walt Parr

Nickname

walt-parr

Year of Birth

1960

Gender

Male

Location

Azle Texas

Relationship

Patient

Short Bio

I was diagnosed with CMT in Jan after going 9 months with a probability of ALS. My new Neurologist (CMT specialist) thought the CMT was masking a Neuromuscular disorder and in Sept said I have LGMD. Having to get myself informed on my diseases via the internet because my Neurologists gave me very little data. I have just started wearing AFOs to help with the CMT.

How did you hear about us?

MuscularDystrophyNews.com

How long have you or the person that you are caring for had MD?

Just diagnosed Sept 2021 but been symptomatic for over 2 years

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