Muscular Dystrophy News Forums | Ren | Activity https://musculardystrophynews.com/forums/members/beckerfather/activity/ Activity feed for Ren. Fri, 01 May 2026 19:01:12 -0500 https://buddypress.org/?v=2.21.1 en-US 30 hourly 2 9707fbc27113a7268679898c7adde082 Ren replied to the discussion Edg5506 in the forum Science, Research, Clinical Trials https://musculardystrophynews.com/forums/forums/topic/edg5506/#post-18032 Wed, 25 May 2022 13:00:33 -0500 Reply to Edg5506

Here is a link regarding this drug:

Edgewise Therapeutics Announces Positive Topline Results From EDG-5506 Phase 1b Trial in Adults With Becker

Phase 2 starts in a few months. Are you interested to participate? As Becker patients feel normal when they start in life, they stay… Read more

]]> e96a3c9877b17fb6b5fedc43a2398933 Ren replied to the discussion Welcoming MD New Today’s New Columnist, Andy Rusch in the forum Adults​ ​With​ ​Muscular Dystrophy https://musculardystrophynews.com/forums/forums/topic/welcoming-md-new-todays-new-columnist-andy-rusch/#post-17177 Sun, 20 Jun 2021 16:58:45 -0500 Reply to Welcoming MD New Today’s New Columnist, Andy Rusch

I am so sorry to read this. Unfortunately, I am a father of a Becker child, I am not afflicted myself. I wish I could help you in a way or another. What kind of mutation has he? There is more variability than with Duchenne.

My boy has a great sense of humour too, but he is ADHD also. He is not adolescent yet and is ambulatory. I hope your… Read more

]]> 7f2788d014195c9fad0b9d166681266b Ren replied to the discussion Welcoming MD New Today’s New Columnist, Andy Rusch in the forum Adults​ ​With​ ​Muscular Dystrophy https://musculardystrophynews.com/forums/forums/topic/welcoming-md-new-todays-new-columnist-andy-rusch/#post-17172 Wed, 16 Jun 2021 22:07:09 -0500 Reply to Welcoming MD New Today’s New Columnist, Andy Rusch

Hello,

I stumbled by chance on Andy Rusch. It is extremely rare to find a Becker MD voice on the net. Much rarer than Duchenne MD, although the proportion could reach a third of the Duchenne population. A paradoxical problem with Becker, is that it can’t be seen to observers until adulthood and this is partially what this story is about.

I… Read more

]]> 6ca61e1cac33a89af0879960445b7179 Ren posted a new activity comment https://musculardystrophynews.com/forums/activity/p/2656/#acomment-2679 Fri, 20 Sep 2019 16:58:20 -0500 I have no idea if you share the answer I gave to Dani, so what I post here may duplicate my prior answer to her. Thank you for your welcome. I felt compelled to register here, because I wanted to let know to all your team how important this site is in terms of news for MD. It gives hopes to patients/caretakers and informs about the… Read more

In reply to - Ren became a registered member ]]> 2abc90b70a08eaba049764b4753026dc Ren posted a new activity comment https://musculardystrophynews.com/forums/activity/p/2656/#acomment-2678 Fri, 20 Sep 2019 16:52:42 -0500 Thank you for your welcome. I felt compelled to register here, because I wanted to let know to all your team how important this site is in terms of news for MD. It gives hopes to patients/caretakers and informs about the research going on on a global basis.

A major issue is the segmentation between the many sites/associations. Some kind… Read more

In reply to - Ren became a registered member ]]> 4608e47a278fc8ea8fe71788485aa64e Ren became a registered member https://musculardystrophynews.com/forums/activity/p/2656/ Wed, 18 Sep 2019 11:40:22 -0500 5