Log In or Register to Join The Conversation!
  • Ren posted a new activity comment 1 year, 1 month ago

    I have no idea if you share the answer I gave to Dani, so what I post here may duplicate my prior answer to her. Thank you for your welcome. I felt compelled to register here, because I wanted to let know to all your team how important this site is in terms of news for MD. It gives hopes to patients/caretakers and informs about the research…

    [Read more]

    • Thank you for your feedback about our site, Ren. It always helps us to improve when we receive reviews from our members.

  • Ren posted a new activity comment 1 year, 1 month ago

    Thank you for your welcome. I felt compelled to register here, because I wanted to let know to all your team how important this site is in terms of news for MD. It gives hopes to patients/caretakers and informs about the research going on on a global basis.

    A major issue is the segmentation between the many sites/associations. Some kind of…

    [Read more]

  • Ren became a registered member 1 year, 1 month ago

    • Welcome, Ren! My name is Dani Liptak. I am a forums moderator! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any questions in general…[Read more]

      • Thank you for your welcome. I felt compelled to register here, because I wanted to let know to all your team how important this site is in terms of news for MD. It gives hopes to patients/caretakers and informs about the research going on on a global basis.

        A major issue is the segmentation between the many sites/associations. Some kind of…

        [Read more]

    • Hi there Ren. My name is Leah and I am a moderator here alongside Dani. I have a rare form of Muscular Dystrophy called Mitochondrial Myopathy that I was diagnosed with at the age of nine through a muscle biopsy.

      Dani and I are excited to have you as a part of the Muscular Dystrophy forum community and look forward to connecting with you. The MD…[Read more]

      • I have no idea if you share the answer I gave to Dani, so what I post here may duplicate my prior answer to her. Thank you for your welcome. I felt compelled to register here, because I wanted to let know to all your team how important this site is in terms of news for MD. It gives hopes to patients/caretakers and informs about the research…

        [Read more]

        • Thank you for your feedback about our site, Ren. It always helps us to improve when we receive reviews from our members.

Copyright © 2017-2020 All rights reserved.

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending
or

Log in with your credentials

or    

Forgot your details?

or

Create Account