@cmiddletown71
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Cynthia Barrett posted a new activity comment 1 month, 2 weeks ago
It’s so nice to hear from you! My son was diagnosed with
Becker’s MD when he was 8. He is now 45 and his disease is progressing but his heart is growing larger everyday with determination to keep going!! He’s so smart and special!! He keeps me sane most days!! He needs almost total care but he expresses his needs if needed. I’m 71 and… -
Cynthia Barrett became a registered member 1 month, 2 weeks ago
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Welcome, Cynthia! My name is Dani Liptak. I am a forum moderator, along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any…[Read more]
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Hi there Cynthia and welcome to the Muscular Dystrophy Forums. Dani and I are happy to have you as a part of this community.Before I tell you about the forum, I would like to introduce myself. My name is Leah Leilani and I am a co-moderator for the forums alongside Dani Liptak. I was born with a rare form of Muscular Dystrophy called…
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It’s so nice to hear from you! My son was diagnosed with
Becker’s MD when he was 8. He is now 45 and his disease is progressing but his heart is growing larger everyday with determination to keep going!! He’s so smart and special!! He keeps me sane most days!! He needs almost total care but he expresses his needs if needed. I’m 71 and…-
Hi Cynthia, your fear is valid, and I know it is a concern for many family members as their loved one’s age. Something my parents did for me was meet with a disability lawyer and set some things up that would protect me once they pass. I hope never to need to go into a care facility as I have heard horror stories about them. A lot of my fear is…[Read more]
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Cynthia, I understand why you’re going through since my parents are older as well and their health isn’t what it used to be. My parents did the same as Dani’s and spoke with a lawyer to set up a Special Needs Trust to secure my future should something happen to my parents. My parents house (which I live in) and my wheelchair accessible van h…
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Hi Cynthia, your fear is valid, and I know it is a concern for many family members as their loved one’s age. Something my parents did for me was meet with a disability lawyer and set some things up that would protect me once they pass. I hope never to need to go into a care facility as I have heard horror stories about them. A lot of my fear is…[Read more]
[Read more]