Muscular Dystrophy News Forums | Cynthia Barrett | Activity https://musculardystrophynews.com/forums/members/cmiddletown71/activity/ Activity feed for Cynthia Barrett. Fri, 24 Apr 2026 18:13:34 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 d87f59e49c60f121d0a72872487206ac Cynthia Barrett replied to the discussion Welcoming MD New Today’s New Columnist, Andy Rusch in the forum Adults​ ​With​ ​Muscular Dystrophy https://musculardystrophynews.com/forums/forums/topic/welcoming-md-new-todays-new-columnist-andy-rusch/#post-17188 Tue, 22 Jun 2021 20:33:57 -0500 Reply to Welcoming MD New Today’s New Columnist, Andy Rusch

thanks for writing!! My son is now 46. At 27 he had an heart attack. Very scary but his doc saved him!! He was in a facility at the time and had delayed care! By the time I got there he was very ill and I called ambulance right away. Doc in ER was right on it. Now with meds and ICD in his  chest things are going well. He’s had it there for 10… Read more

]]> a63ba477c9bc7ff7af4121473ac3a808 Cynthia Barrett replied to the discussion Welcoming MD New Today’s New Columnist, Andy Rusch in the forum Adults​ ​With​ ​Muscular Dystrophy https://musculardystrophynews.com/forums/forums/topic/welcoming-md-new-todays-new-columnist-andy-rusch/#post-17185 Tue, 22 Jun 2021 12:53:46 -0500 Reply to Welcoming MD New Today’s New Columnist, Andy Rusch

Nice to hear from you. My son has interests in many things. He’s a bit shy and reserved. I think if you wrote to him he would be thrilled. He’s feeling down lately and his Covid immunization has left him with terrible vertigo and he can’t even watch tv now too well.
If u feel comfortable and you have time message me and I’ll put you in touch… Read more

]]> 13f31f3616485af4039173e5d2941fb0 Cynthia Barrett replied to the discussion Welcoming MD New Today’s New Columnist, Andy Rusch in the forum Adults​ ​With​ ​Muscular Dystrophy https://musculardystrophynews.com/forums/forums/topic/welcoming-md-new-todays-new-columnist-andy-rusch/#post-17176 Fri, 18 Jun 2021 21:15:38 -0500 Reply to Welcoming MD New Today’s New Columnist, Andy Rusch

My son is 46 with Becker’s and it’s been a difficult journey. He’s been in power chair for 18 years now. He needs full care and must be fed now.
although this disease is difficult he embraces all the little things in life more than most of us!! He is awesome, smart, and great sense of humor. Andy it would be great if you two could hook up!!

]]> 6316595a4ba898d1b3d19f34944509d9 Cynthia Barrett started the discussion How Moderna shot effected me in the forum COVID-19 and MD https://musculardystrophynews.com/forums/forums/topic/how-moderna-shot-effected-me/ Tue, 20 Apr 2021 20:52:04 -0500 How Moderna shot effected me

Since having shot 3 weeks ago my jaw has effected my mouth. I also got hit with TMJ!! I have Becker’s Dystrophy and have been in power chair for 20 years.  I’m getting weaker and am now 46 but this shot has sent me back. Covid has made me scared as we know any respiratory infection would be a serious issue. Emotional trauma is difficult to… Read more

]]> f6dbeb4ff621ec9e05438d2bf2ca40fc Cynthia Barrett posted a new activity comment https://musculardystrophynews.com/forums/activity/p/6250/#acomment-6272 Wed, 13 Jan 2021 02:00:05 -0600 It’s so nice to hear from you! My son was diagnosed with
Becker’s MD when he was 8. He is now 45 and his disease is progressing but his heart is growing larger everyday with determination to keep going!! He’s so smart and special!! He keeps me sane most days!! He needs almost total care but he expresses his needs if needed. I’m 71… Read more

In reply to - Cynthia Barrett became a registered member ]]> a47f2e777ae0fc43383ed4f8538276f0 Cynthia Barrett became a registered member https://musculardystrophynews.com/forums/activity/p/6250/ Sat, 09 Jan 2021 17:08:41 -0600 5