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  • Hello, my name is Susan and my husband is currently being tested. His symptoms began several years ago, as an adult, and is progressively getting worse. So far, the genetic testing they have done, gave no answers, his EMG came back normal, yet, his specialist still feels he may have something going on. My husbands symptoms include recurrent…[Read more]

    • Hi Susan, not knowing what is happening to your husband can be scary and make one feel helpless. When I was first diagnosed, I was also confused, but I felt some sort of relief once I had an answer. I hope you both will feel the same. I want you to know whatever the diagnosis, there is a strong community here for you! If he doesn’t have MD, I know…[Read more]

  • Susan became a registered member 1 month, 1 week ago

    • Welcome, Susan. My name is Dani Liptak. I am a forum moderator, along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any…[Read more]

    • Hi Susan and welcome to the Muscular Dystrophy Forums. Dani and I are happy to have you as a part of this community.

      Before I tell you about the forum, I would like to introduce myself. My name is Leah Leilani and I am a co-moderator for the forums alongside Dani Liptak. I was born with a rare form of Muscular Dystrophy called…

      [Read more]

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