Log In or Register to Join The Conversation!
  • Hello, I am new and very happy to find this forum. I believe that fighting for MD all together is very critical and I want to thank you all guys have this website/forum available for us. I kindly request some helps and advices about my newphew. My nephew is diagnosed Duchenne MD, He was 13 years old now. His weight and height are 44 kg (93 lbs)…[Read more]

  • Mehmet Fatih OGUZ posted a new activity comment 6 months ago

    Hi Dani, I m very pleased to mee you and Leah. My nephew was diagnosed Duchenne MD. I try to help him and his family. In Turkey, I think we have not organized as to help each other. So I am very happy to find you. We really need your experience and advice. So I have some questions,about increase life comfort and quality.
    • Mehmet Fatih OGUZ posted a new activity comment 6 months ago

      Hi Leah, I m very pleased to mee you and Dani. My nephew was diagnosed Duchenne MD. I try to help him and his family. In Turkey, I think we have not organized as to help each other. So I am very happy to find you. We really need your experience and advice. So I have some questions,about increase life comfort and quality.
      • Mehmet Fatih OGUZ became a registered member 6 months, 1 week ago

        • Welcome Mehmet! My name is Dani Liptak I am a forums moderator! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any questions in…[Read more]

          • Hi Dani, I m very pleased to mee you and Leah. My nephew was diagnosed Duchenne MD. I try to help him and his family. In Turkey, I think we have not organized as to help each other. So I am very happy to find you. We really need your experience and advice. So I have some questions,about increase life comfort and quality.
          • Hi there Mehmet. My name is Leah and I am a moderator here alongside Dani. I have a rare form of Muscular Dystrophy called Mitochondrial Myopathy that I was diagnosed with at the age of nine through a muscle biopsy.

            Dani and I are excited to have you as a part of the Muscular Dystrophy forum community and look forward to connecting with…

            [Read more]

            • Hi Leah, I m very pleased to mee you and Dani. My nephew was diagnosed Duchenne MD. I try to help him and his family. In Turkey, I think we have not organized as to help each other. So I am very happy to find you. We really need your experience and advice. So I have some questions,about increase life comfort and quality.
          Copyright © 2017-2020 All rights reserved.

          CONTACT US

          We're not around right now. But you can send us an email and we'll get back to you, asap.

          Sending
          or

          Log in with your credentials

          or    

          Forgot your details?

          or

          Create Account