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Ian Narita

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@narit

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    Ian Narita replied to the topic To Save the Wheelchair or Not to Save the Wheelchair; The Story of a House Fire in the forum Adults​ ​With​ ​Muscular Dystrophy 8 months ago

    I don’t want to be scary here. I tend to be long winded. I do want to make people think of what if.

    A couple of days ago a grass fire started in the neighborhood. When I didn’t hear fire trucks after more than a few minutes I called 911. The benefits of living in a smallish town is 911 can spend time on the phone.

    The 911 operator said they had…[Read more]

  • Profile picture of Ian Narita

    Ian Narita replied to the topic To Save the Wheelchair or Not to Save the Wheelchair; The Story of a House Fire in the forum Adults​ ​With​ ​Muscular Dystrophy 9 months ago

    Having been thru a house fire can be traumatic. Even if the damage is minimal.

    Before I was disabled, my family and I went through a fire, and it was years to recover.

    Mostly just kept going til we were back where we were.

    One of the things I checked on when I got my first chair was loss insurance (at the time we were renters) for theft or…[Read more]

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    Ian Narita replied to the topic Mobility Device Stops Working in Public in the forum Mobility Aids and Medical Equipment 9 months ago

    Couple of years ago I was on the way to the Doctor, when my chair quit.

    Someone had not connected the charger properly and the batteries died. All I could do was get my son to disconnect the clutches (?). And for my son to push the chair back to the house. Rescheduled the Doctors appointment and went another day.

    It’s why one of my sons usually…[Read more]

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    Ian Narita replied to the topic International wheelchair day in the forum Adults​ ​With​ ​Muscular Dystrophy 3 years, 3 months ago

    I don’t use mine enough. I kinda need to get out more. Tuesday was election day. To the fairgrounds and back. Used to go to the doctor’s office in the chair. He has moved his office and the new location is considerably further, and will be a car trip from now on.

    This winter the only time I got out was when Union Pacific brought UP’s big steam…[Read more]

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    Ian Narita became a registered member 3 years, 3 months ago

    • Profile picture of Danielle "Dani" Liptak
      Danielle "Dani" Liptak replied 3 years, 3 months ago

      Welcome Ian! My name is Dani Liptak. I am a forum moderator along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any…[Read more]

    • Profile picture of Leah Leilani
      Leah Leilani replied 3 years, 2 months ago
      Hey there Ian. My name is Leah and I am a moderator here alongside Dani. I have a rare form of Muscular Dystrophy called Mitochondrial Myopathy that I was diagnosed with at the age of nine through a muscle biopsy.

      Dani and I are excited to have you as a part of the Muscular Dystrophy forum community and look forward to connecting with you.…

      [Read more]

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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