Log In or Register to Join The Conversation!
  • Sara changed their profile picture 4 months, 2 weeks ago

  • Sara posted a new activity comment 4 months, 2 weeks ago

    Hi Leah, Dani – thanks for the warm welcomes. I have FSH dystrophy like Dani, but I actually don’t remember being formally diagnosed; I know it’s in my medical records, but it runs in my family and my grandmother, my mom, and two of my aunts all have/had the condition, so there wasn’t really a need for formal diagnosis to understand what was…

    [Read more]

  • Sara became a registered member 4 months, 2 weeks ago

    • Hi there Sarah and welcome to the Muscular Dystrophy Forums. Dani and I are happy to have you as a part of this community.

      Before I tell you about the forum, I would like to introduce myself. My name is Leah Leilani and I am a co-moderator for the forums alongside Dani Liptak. I was born with a rare form of Muscular Dystrophy called…

      [Read more]

    • Welcome, Sara! My name is Dani Liptak. I am a forum moderator, along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any…[Read more]

      • Hi Leah, Dani – thanks for the warm welcomes. I have FSH dystrophy like Dani, but I actually don’t remember being formally diagnosed; I know it’s in my medical records, but it runs in my family and my grandmother, my mom, and two of my aunts all have/had the condition, so there wasn’t really a need for formal diagnosis to understand what was…

        [Read more]

Copyright © 2017-2020 All rights reserved.

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending
or

Log in with your credentials

or    

Forgot your details?

or

Create Account