Short Bio |
My daughter will be 6 in March, diagnosed with Lama2 Muscular Dystrophy around 18-19 months of age. Severely disabled but very intelligent but don’t let me forget super sassy. G-tube placed at age 3 best decision I’ve made also nerve wracking not knowing the unknown. She has equipment for about everything just needs the motor wheelchair that is on hold due to my transportation situation. I pray it will all work out.
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How long have you or the person that you are caring for had MD? |
5 years, since birth.
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