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Tracy Myall replied to the topic Favorite Unhealthy Indulgence Foods in the forum Adults With Muscular Dystrophy 3 weeks, 5 days ago
Since this whole Covid thing started I have been more stressed and of course been in the house most of the time. I find that I crave baked goods, which I never used to eat. Cookies and danishes, muffins etc. I feel like I have definitely put on the Covid 15 that they talk about. Not sure if it’s exactly 15 pounds because I’m afraid to get on the…[Read more]
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Tracy Myall replied to the topic United States and Stimulus Check in the forum Coronavirus (COVID-19) and MD 3 weeks, 5 days ago
I have received the two stimulus checks that have been put out so far. I’ve mainly had to use them To pay bills, but I have spent a little bit on myself. Just things I need and that will help me enjoy life a little more.
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Tracy Myall replied to the topic Limited Income in the forum Adults With Muscular Dystrophy 3 weeks, 5 days ago
I do have some retirement savings from when I was working, but I just fear that it will not be enough when the time comes.
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Tracy Myall replied to the topic Limited Income in the forum Adults With Muscular Dystrophy 3 weeks, 5 days ago
I completely understand. I too have a hard time saving money. I’ve been on disability since 2009 and of course but a fixed income it makes things difficult. Especially when you have to pay for help to come in and do housework, cooking etc. I just can’t do the things I used to do so I spend most of my extra money on help. Fortunately both of the…[Read more]
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Tracy Myall replied to the topic What Did You Learn in 2020 in the forum Adults With Muscular Dystrophy 1 month, 2 weeks ago
I think I’ve learned how fragile life is, and what it is like to feel helpless against something that no one can seem to control. I’ve also learned the value of family and friends, and that we shouldn’t take for granted being able to see and socialize with them, hug them or tell them in person that we love them.
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Tracy Myall replied to the topic National Registry for Muscular Dystrophy in the forum Clinical Trials 1 month, 2 weeks ago
I’m not sure if there is a national registry for Myofibrillar myopathy. I know it’s rare and I never see articles or information about it posted on the site. It’s kind of frustrating to have a type of MD that you can’t find any information on. All I get is from my neurologist. I guess I could ask him if there is a national registry. It would b…[Read more]
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Tracy Myall replied to the topic Missing Life Before COVID in the forum Adults With Muscular Dystrophy 1 month, 2 weeks ago
I miss my family most of all. Being able to see them in person and touch them/hug them. Some of my family is older and we have to be safe and stay apart for now. But my dad has health issues and I worry so much about him but don’t want to go see him during this period. It’s been a really hard on me and causes a lot of anxiety
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Tracy Myall replied to the topic Tips to Fight Off Your 2020 Mental Funk in the forum Adults With Muscular Dystrophy 3 months, 1 week ago
This year has made my depression and anxiety even worse. I would love to hear some others give ideas on how they relieve their 2020/COVID-19 blues
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Tracy Myall replied to the topic Thanksgiving Day Plans in the forum Adults With Muscular Dystrophy 3 months, 1 week ago
This year will be only myself and my roommate having Thanksgiving, unless his son comes over as well. It’s just too scary to go out right now. I’d love to go visit with my dad for Thanksgiving but he has so many health issues that I would hate to bring it into his home if I had it and did not know it. And he says the same for me. We both have a l…[Read more]
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I am looking forward to and hoping the vaccines will be ready and available to everyone too! There has been so much debate about who it should go to and whatnot, but I think everyone should have it, especially those working in the medical field, schools, those essential jobs.
I am spending Thanksgiving with my parents, who I live with. I am not…[Read more]
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Tracy Myall replied to the topic Having Your Nails Cut by Someone Else in the forum Adults With Muscular Dystrophy 3 months, 1 week ago
I have a really hard time reaching my toenails because of my fused back. So far I’ve been able to cut them by myself, barely. But I dread the day I have to have someone else do it. I don’t mind getting a pedicure, but it seems weird to me to have to ask a helper to cut my toenails. Does that seem weird to you
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I thought it would be weird to have a helper assist me in the shower with things, but it turned out fine once it happened. I let my anxiety create a story in my head, which built up worry that it would be weird once you do it once and realize that having someone help you, whether cutting toenails or helping you to the bathroom, it’s not so weird.
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that’s a good point, Dani. often times situations aren’t as bad as we make them out to be. My mom used to be the one to help me bath but then she began showing signs of MD. At first, I was uncomfortable having my dad help me bathe but after a while we both got used to it and it was fine.
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Tracy Myall replied to the topic Shaking due to muscle weakness in the forum Adults With Muscular Dystrophy 1 year ago
My tremors come and go. I noticed that they are worse after I have been to physical therapy and my muscles are tired. And also when I am under a lot of stress. I suffer from anxiety so that doesn’t help the situation 🙁
When I first noticed them it was in meetings at work when I would try to drink coffee out of Styrofoam cups. My hands would s…[Read more]
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Tracy Myall replied to the topic Shaking due to muscle weakness in the forum Adults With Muscular Dystrophy 1 year ago
I have had arm and hand tremors since I was in my 30s but I was not diagnosed with MD until 2018 when I was 55. I now have neck tremors as well sometimes. I saw a neurologist at UCSF and he said they were not related to my MD but were Essential familial tremors. That’s interesting that you have them and they are related. I have Myofibrillar M…[Read more]
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Tracy Myall became a registered member 1 year, 3 months ago
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Welcome Tracy! My name is Dani Liptak I am a forums moderator! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Let me know if there is a topic that you would like to discuss or if you have any questions in general…[Read more]
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Hi there Tracy. My name is Leah and I am a moderator here alongside Dani. I have a rare form of Muscular Dystrophy called Mitochondrial Myopathy that I was diagnosed with at the age of nine through a muscle biopsy.
Dani and I are excited to have you as a part of the Muscular Dystrophy forum community and look forward to connecting with you. The…[Read more]
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The first thing I did when I had anxiety and depression was contacting my therapist and setting up weekly virtual chats. Then it became once every two weeks and then once every three weeks. I haven’t talked to her in a month or so, but it is good to have one to see right away when you need it. My therapist gave me the tools to deal with my anxiety…[Read more]