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Article: How an Albino Direwolf Named Ghost Made Me Think About Being Rare
“This is the first Rare Disease Day in which I plan to fully acknowledge my Becker muscular dystrophy by telling my story, and I’m doing it through this column. This decision comes from a place of accepting myself and who I am.”
Andy acknowledges the profound similarities between himself and Ghost, a Game of Thrones character as he delves into the rarity of his disease and his life with Becker’s MD in his new column article.
What does Rare Disease Day mean to you? Have you found others like you and whom you can relate to within the MD community?
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