Members directory

  • Profile picture of Travis
    active 1 hour, 37 minutes ago
  • Profile picture of Kevin Schaefer
    active 8 hours, 13 minutes ago
  • Profile picture of Ralph Yaniz
    active 9 hours, 38 minutes ago
  • Profile picture of Marta Ribeiro
    active 12 hours, 46 minutes ago
  • Profile picture of Joe Pierce
    active 15 hours, 31 minutes ago
  • Profile picture of Pete Barron
    active 1 day, 9 hours ago
    - "I greatly appreciate Hawkeen’s post about the benifits of “social distancing. I’m also always looking for the positive takeaway from otherwise negative situations. I think he “hit the nail on the head!”"View
  • Profile picture of Michael Morale
    active 2 days, 13 hours ago
    - "Hey everyone, my name is Michael Morale, and I’m the Multichannel Content Director for Muscular Dystrophy News Today. Our forums provide the greatest amount of information and support for our members. Find the i […]"View
  • Profile picture of Tari CK
    active 4 days, 10 hours ago
  • Profile picture of Janee’ Sconiers
    active 4 days, 11 hours ago
  • Profile picture of Lindsey Baker
    active 4 days, 13 hours ago
  • Profile picture of C. UK.
    active 4 days, 14 hours ago
    - "P.S Has anyone heard of any research into myofibrillar myopathy from a mutation in the filamin c gene ? I would be interested to know and for trials, although I expect none exist… che sera.."View
  • Profile picture of Danielle "Dani" Liptak
    active 1 week ago
    - "February 29th is Rare Disease Day! What makes you rare? Share on our forums and post to your social media with the hashtag #WhatMakesMeRareMD"View
  • Profile picture of Rich P
    active 1 week ago
  • Profile picture of Isaura Santos
    active 1 week, 4 days ago
  • Profile picture of Ruben
    active 1 week, 5 days ago
  • Profile picture of Glendalee Deruiter
    active 2 weeks ago
  • Profile picture of Ian Narita
    active 2 weeks ago
  • Profile picture of Leah Leilani
    active 2 weeks, 1 day ago
  • Profile picture of Mirna Azraq
    active 2 weeks, 1 day ago
    - "my son has Dmd and in my country we haven’t a treatment or doctors have a knowledge in this desias"View
  • Profile picture of Philip
    active 2 weeks, 1 day ago
  • Profile picture of Christine T. Yang
    active 2 weeks, 3 days ago
  • Profile picture of Donald Cole
    active 2 weeks, 5 days ago
    - "just found out as well as myself who has md 2 of my audult boys have it to,,neroligasigst very concerned as he says my condition is very rare but for 2 of my boys to have it is unbelievable"View
  • Profile picture of Rameshan
    active 3 weeks ago
  • Profile picture of Cindy Schaefer
    active 3 weeks, 1 day ago
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