I think we need to remember that each person is unique and every situation is unique. I have a very high pain threshold, and I find I am almost dangerous for not feeling pain.  The important stuff to remember is to find a great surgeon who works with those of us with Muscular Dystrophy, and just as important to find and have an interview with… Read more

I had a “lightning bulb” moment several years ago regarding the clothing alteration issue while watching a TV show about a family of little people. The wife/mom on the show was sharing a memory about her mom who had made it a priority to have her young daughters’ clothing altered so she would feel better about herself, using the logic that… Read more