This is right up my alley. I assume many other DM2 patients as well. It has never been from friends or family though.  DM2 is kind of like many cases of multiple sclerosis and a few other diseases in that strangers will look at me and have no idea that I have this condition. I appear to be like every other healthy person. I have had neighbors… Read more

Yes. I have had two swallow studies. The most recent one showed food and fluids going down the wrong “chute”. They get almost to the vocal chords (which they said is the point of no return) before my muscles catch it and force it back up and then down the correct “chute”.

She gave me several exercises to practice. The most helpful one is where… Read more

It is actually funny you mention this. I just turned 50 three weeks ago.  And I just had my first colonoscopy last week. I did things a little differently than most Americans. I did it without anesthesia. That is how most people do it in Europe, but in the USA less than 1% of people do it without anesthesia.

 

I chose this way because I don’t… Read more

I have one brother who is three years younger than I am. He has not been tested. He does not want to be tested. He does not want to know.

In his favor, he has not had any symptoms yet. But, he is now approaching the age I was when I first diagnosed. So he is not out of the woods yet. But, frankly, if he does start having symptoms now,… Read more

In hindsight, the IgG deficiency and resulting repeated bouts of pneumonia was the first clue I Had DM2.  It took another ten years for the fatigue, muscle weakness and muscle pain to arrive – still no myotonia.

In January 2016 my father passed away. The day before he died they took a blood sample. A month later the results come back and… Read more

I don’t Want to discourage anyone from getting the pneumonia vaccine, but I will share my experience. I had pneumonia 5 times in 7 years roughly ten years ago. Each time, I asked the doctors why I got it and they said it was just bad luck. Each time they gave me the vaccine. Until I finally had a GP test my immunoglobulin levels (IgG… Read more