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    • #16269
      Leah Leilani
      Keymaster

      Does your spouse or partner ever down-play or question the reality of your symptoms? How do you handle tough situations like these?

      Many of us already experience frustrating condescension from our doctors. Not to mention our own worries about the severity of our mysterious symptoms. Although our loved ones may think that sharing their opinions about our medical problems is helpful, it usually only adds to our stress.

    • #16278
      Phil rosenstein
      Participant

      This is right up my alley. I assume many other DM2 patients as well. It has never been from friends or family though.  DM2 is kind of like many cases of multiple sclerosis and a few other diseases in that strangers will look at me and have no idea that I have this condition. I appear to be like every other healthy person. I have had neighbors or strangers ask my wife why she was shoveling all the snow or mowing the grass. “Your husband should be doing that”

      I usually don’t park in the handicapped parking spaces, but I occasionally use the handicapped placard when I am not feeling well. And there have been times when I get a stern look from someone who thinks I’m just a selfish jerk.

      And there have also been times when someone asks for help lifting something and I then have to opt out gracefully or explain that I cannot because of the DM2 (which I would prefer not to do). This has actually happened a lot.

      So, no, my friends who know and my family have never underestimated my condition and symptoms. If anything, my friends and family usually try to baby me. It is just acquaintances and strangers. And that is simply because I do not look like a person with a condition.

    • #16279
      Leah Leilani
      Keymaster

      I know some of what you’re talking about Phil. My type of MD is invisible too. I do use a wheelchair when I’m out and about so I don’t have people ask me for help or give me looks when I park in the handicapped parking spot but if I’m shopping and get out of my chair to reach something, I can feel the stares.

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