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    • #14393

      When did you know you needed more help in the shower? Did you go through your insurance? What was it like to have someone shower you for the first time, that was not family?

      I recently had a nurse come to my home to inspect it. I am planning on hiring someone to come once a week and help me shower. This is definitely a first for me, so please, share your experiences here!

    • #14542
      JD
      Participant

      Thank you for this!  I need to get the small bath remodeled and I will be looking into getting help.

       

    • #14554
      Kimberly Reynolds
      Participant

      I still shower myself but last week was like Christmas early. I had a ramp installed from the house to our attached garage and hand rails in the shower. I feel like I don’t have a disability again. I will eventually need more help but get what you need right away when you need it and it keeps you from feeling as helpless. Next I’ll add a seat in the shower and eventually I’ll need someone to help me get in but a shower head with a longer than normal hose will keep me showering myself longer! I can only use the expense as a tax deduction along with other medical expenses. I earned too much for low income assistance and insurance didn’t cover it.

    • #14557
      Philip
      Participant

      Hi Dani

      I now accept that I can’t manage without help and in January will have a f/t PA/carer (I hope).  So will then have my first experience of being helped with showering – and toileting, getting dressed etc.

      I’m not looking forward to another ‘step’ in the journey of lost Independence.  I will have to pay for the care which is a worry as it will burn up our savings and I’m concerned that my wife will be left with little for her needs in the future.

      I’m sure I will adapt to being showered but it will feel weird to begin with.  The positive is that all the personal care should consume less of my energy which I can then harness for more interesting pursuits

    • #14594
      Leah Leilani
      Keymaster

      It can definitely be an awkward thing at first. My mom used to always be the one to help wash my hair but now that she has MD my dad helps me while I’m in the bath. I am still able to scrub myself for the most part. My dads scrubs my limbs, washes my hair, helps me take off my clothes and put on a new outfit. It took a while to teach him how to do these tasks properly and still forgets certain steps but I think that just happens when you depend on someone else.

    • #14601
      Philip
      Participant

      Leah thanks for sharing your experience.   I’m sorry to hear your mom has MD now.  Bless your dad for stepping in and adapting to help you.  All best wishes Leah to you and your loved ones for the Christmas holidays and 2020

    • #14643
      Leah Leilani
      Keymaster

      Thank you Philip for your kind words. It is definitely a struggle for my mom and family now that she has MD but somehow we manage to make it work. I hope you and your family has a wonderful holiday as well and a happy New Year!

    • #14646
      Philip
      Participant

      Thanks Leah. Isn’t it amazing how somehow we work out how to manage in challenging circumstances?! For me that determination is driven by willpower to keep living as fully as possible.  It is harder for you with both your mum and you needing help when ideally you would be helping each other. Best wishes Leah

    • #14570
      Rameshan
      Participant

      Hi Dani

      I know it would be really awkward to take the help from a strange for such a private thing.

      So i want to put you at ease with a joke. Hope it’s not a man!😜😝

      Regards

      RAMESH

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