@adela
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Adela started the topic Accessibility, environmental regulation, safety of people with MD in the forum Using our forums 1 year, 3 months ago
At 9, I was diagnosed with LGDM2A. Nowadays (I’m 37 now), the more I find, the more I find that I need an environment that is accessible and safe for me and that I can reduce the impact of disabilities or the limits that come with it by setting up an environment. I started research at our University (Palacký University, Czech Republic) that deals…[Read more]
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Adela became a registered member 1 year, 3 months ago
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Hi, Adela! My name is Dani Liptak. I am a moderator on the forums, along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Also, let me know if there is a topic that you would like to discuss or any…[Read more]
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Hi there Adela. My name is Leah and I moderate the forums alongside Dani. I have a rare form of MD called Mitochondrial Myopathy that I was diagnosed with at the age of 9.Here at the MD Forums, we are like a support group-sharing experiences, giving advice and discussing life with MD in our many forum topics. This a safe and judgment free…
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Thanks for sharing!