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Adela

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@adela

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    Adela started the topic Accessibility, environmental regulation, safety of people with MD in the forum Using our forums 1 year, 3 months ago

    At 9, I was diagnosed with LGDM2A. Nowadays (I’m 37 now), the more I find, the more I find that I need an environment that is accessible and safe for me and that I can reduce the impact of disabilities or the limits that come with it by setting up an environment. I started research at our University (Palacký University, Czech Republic) that deals…[Read more]

    • Profile picture of Danielle "Dani" Liptak
      Danielle "Dani" Liptak replied 1 year, 3 months ago

      Thanks for sharing!

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    Adela became a registered member 1 year, 3 months ago

    • Profile picture of Danielle "Dani" Liptak
      Danielle "Dani" Liptak replied 1 year, 3 months ago

      Hi, Adela! My name is Dani Liptak. I am a moderator on the forums, along with Leah! I was diagnosed with a type of MD called facioscapulohumeral dystrophy at the age of 12. Please feel free to respond to any of the open discussions that we currently have in progress! Also, let me know if there is a topic that you would like to discuss or any…[Read more]

    • Profile picture of Leah Leilani
      Leah Leilani replied 1 year, 3 months ago
      Hi there Adela. My name is Leah and I moderate the forums alongside Dani. I have a rare form of MD called Mitochondrial Myopathy that I was diagnosed with at the age of 9.

      Here at the MD Forums, we are like a support group-sharing experiences, giving advice and discussing life with MD in our many forum topics. This a safe and judgment free…

      [Read more]

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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