Activity

Do you know what Imposter Syndrome is and if so, do you think you may have it?
Imposter Syndrome is when you feel like a failure even when there is obvious evidence of success.
I have always struggled with perfectionism and being overly ambitious beyond my capabilities. I can never seem to see the excellency of my work and talents unless…[Read more]

Do you live a small house or apartment? What have you done to accommodate your mobility aids?
I live in a house that was built in 1927 so it’s a relatively smaller house. We’ve had to put expandable door hinges on several doors in our home to allow more room for my wheelchair. Some entryways are still narrow and I still end up scratching eit…[Read more]

Today I spent one hour on the phone with the IRS and then another 30 minutes on the phone with my insurance company. I am exhausted now. I am not exactly sure what causes fatigue after being on hold on the phone or trying to explain your problem to whoever is on the other line.

When you have to make phonecalls for whatever reason and you know it…[Read more]

“I sometimes feel as though my disability is a filter, revealing the true colors of those I meet and weeding out the ones who aren’t really there for me. As I’ve gotten older, I’ve developed gratitude for my disease’s ability to ward off unwanted guests. Unfortunately, people aren’t always easy to read, and I have to make the difficult decision of…[Read more]

Although working freelance has its ups and down, Hawkin has found that is the best fit for his life with Duchenne MD.
“COVID-19 has forced an experiment. I’ve learned the best way I work, and I’ve molded my career to fit the realities of living with Duchenne. I see how freelancing can help overcome my disability, but I’ve also seen how it can…[Read more]

I learned that face masks impose heat, friction, and occlusion on the skin, and when combined with a moist environment from breathing, talking, or sweating, this is a recipe for breakouts. Pores get clogged and can become pimples or acne cysts.

Have you noticed if you wear your face mask for a while, then the next day you have pimples? I have…[Read more]

I tend to be a bit of a fidgety, restless person and because of this I pick at my cuticles. It can get pretty bad to the point where my fingers are bleeding and bandaged up. But since purchasing a couple fidget toys, my cuticles aren’t as bad.
It is said that fidget toys keep the bored section of your brain busy, ultimately helping you to f…[Read more]

Do you have a song or more than one that pumps you up with excitement and energy? Do you use that song to get you ready for the day, a date, before a party? What are some songs that you recommend to uplift and motivate?

I love Tina Turner’s Simply the Best and the Guardian’s of the Galaxy has a select few pump-up jams!

Unfortunately, there have been some deaths among family and friends. If you have experienced a death, did you attend the funeral? What was it like? Was there social distancing? Were masks required?

I have not attended any funerals, but I did go to a couple of social distanced memorial services and felt safe. It is hard to imagine not being able…[Read more]

What is the most difficult part of dating online for you? Is it revealing your disability and being ghosted afterwards? Is it being asked if you can have sex or not?
I am still trying to navigate the dating world the best that I can. I find that it takes a massive amount of confidence and thick skin to participate in dating apps. I am constantly…[Read more]

Have you ever had a panic attack? If so, what symptoms do you experience?
I began having panic attacks at 13 years old. Sometimes they’re really noticeable where I get jittery and my heart rate elevates but other times my panic attacks appear in the form of insomnia, restlessness or aggravation. I notice that most times when I leave my house t…[Read more]

Recently I have experienced pain in my feet, specifically my heel, from plantar fasciitis. It is an inflammation of a thick band of tissue that connects the heel bone to the toes. The inflamed tissue runs across the bottom of the foot. Symptoms include stabbing pain near the heel. Pain might be worst in the morning.

I have been working with my…[Read more]