Activity

I got my power chair through NuMotion.  They sent a sales rep to my home with a sample chair to ensure that it was appropriate for my home layout as well as navigating my immediate neighborhood.  Then they coordinated with my neurologist and a seating specialist to prequalify for Medicare coverage. They were quite upfront that Medicare would NOT p…[Read more]

For me personally, it is a bad thing to be disabled. I mean, you all know what happens to us as we grow older, and I’m certainly not looking forward to it. Why would I want to lose control of my body and almost everything I enjoy doing? Its a part of me, and I’m not ashamed of it, but I’m not thankful I have it. A lot of things are parts of me,…[Read more]

The first few wheelchairs I got were through National Seating and Mobility and there were no hiccups. But, my last wheelchair was through NuMotion and, just like Pete said, it was horrendous. It literally took a full year to get my wheelchair. Even when my chair broke down once, National Seating and Mobility responded promptly, unlike NuMotion.…[Read more]

Tracy, dating apps can be difficult to navigate, I won’t lie. I have found it very helpful to watch advice videos from dating coaches on Youtube. I feel a lot better and like a more confident woman after watching them and learning from them. Plus, dating in general has a big learning curve whether you’re on a dating app or not. I suggest sitting…[Read more]

Karl, I have a hard time agreeing that people have a right to be stupid these days. With knowledge at our fingertips, it’s so easy to put some time and effort into being educated on societal matters. I think the problem is that a lot of people aren’t open minded enough to do that. It’s sad really.

Tracy, have you heard of The Spoon Theory before? If not, I suggest looking it up either on Google or Youtube. It simplifies the concept of energy and fatigue in a way that people understand. I use it all the time when meeting new people. I know the struggle of not only being judged because you look fine but also trying to get people to grasp what…[Read more]

This is a great opportunity for members to share their stories! I wished back when I was first diagnosed that there was a place for me to read stories about people with MD and caregivers to feel less alone. Your story could be someone’s guide throughout their life, even their motivation to keep going. Sharing our stories, especially with the…[Read more]

Disability is not something that should place a value or grade on a person’s life. It is just like racism, or other such crap. I have dozens of genes and stuff which I have no control over, yet there are many people who refuse to accept me. That is especially true in church, in politics, in romance, in industry. My MD is no more or less damaging…[Read more]

I sometimes don’t think people understand that I am disabled because I am still walking without the aid of a cane or walker. They don’t understand how fatigued I get just by doing normal things or walking too much. It’s really hard to explain to people. I just don’t think they get it because they don’t see a visible disability.

I haven’t dated since I’ve been diagnosed with muscular dystrophy three years ago. I’ve had two major surgeries and then Covid hit. I need to start getting out more but I don’t even know where to start trying to meet someone. I’m a little bit afraid of the online dating apps. But I’d like to find somebody who has similar interests and well accept…[Read more]

Then it seems to me like the only other option is to shut them down if they make this comment again. Let them know that it’s your body and that Laziness is clearly not the problem and that you don’t wish to discuss the matter further. Stand your ground.