Activity

Do you have good communication with your partner? Do you feel like communication is more or equally as important as it is in any able-bodied or disability free relationship?
One thing I love about my boyfriend is his ability to communicate calmly and clearly. I am always trying to remember to express my emotions and not hold things in. Of course,…[Read more]

Heart disease is the leading cause of death in the United States. According to the Centers for Disease Control, an American will have a coronary event about every 25 seconds. The common risk factors include high cholesterol, high blood pressure, obesity, diabetes, and tobacco use, or second-hand smoke.

How do you try and protect your heart and…[Read more]

What are some things you heard about Ibuprofen? I know to be careful about what it can do to your liver and stomach, and you should never take it on an empty stomach. Do you use Ibuprofen to help your MD symptoms?

I have taken it recently because there has been a pain in my neck, which is muscular or maybe nerve-related, and Ibuprofen,…[Read more]

Do you have trouble breathing while you eat? Does you heart rate quicken because you’re not receiving enough oxygen? Have you ever fainted while eating? Have you considered getting a Tracheotomy help get more oxygen into your lungs? What has your doctor or physical therapist recommended to help with this dilemma?

Alex Dacy, also known as Wheelchair Rapunzel recently made an emotional social media post about needing a minor fix for a part on her wheelchair only to find out that she would have to wait two months to have her wheelchair repaired.

Wheelchair users depend on their wheelchairs to achieve independence. Our wheelchair are our legs-they get us…[Read more]

Do you live on the east coast? Are you preparing for the hurricane season? Have you been following the most recent storm, and do you live in the areas where it could make landfall? How have you started preparing for this specific storm?

Here, in Wilmington North Carolina, we started to move and secure some of the items outside. Although we…[Read more]

Do you watch the Ellen Degeneres show? Were you surprised about the allegations from former employees about what a toxic environment it was to work on her show? Did you read her letter addressing the allegations? What do you think when you find out celebrities that are held to such honorable standards are said to be awful to work for in real…[Read more]

Do you and your caregiver like to learn new things together? For example maybe how to apply gel nail polish or sugar waxing? Maybe you want a different style to your beard or want to try a new recipe? Do you find mastering a new skill and the trial and error that comes along with it a fun activity to do together?

As Ralph Yaniz bids farewell to Muscular Dystrophy News he discloses his future plans to promote awareness for those living with Limb Girdle Muscular Dystrophy through the LGMD Foundation. Read his newest article “A Day on the Hill: Using Our Voice’s to Lobby Lawmakers” to find out about the upcoming virtual event LGMD Day on the Hill hosted by th…[Read more]

How do you weigh yourself at home? Are you able to get out of your chair and use a regular scale? Have you invested in a ramped wheelchair scale that you can drive onto or perhaps a scale for your lift?

Do you believe a term like “ableism” should be used with caution or not? When is it appropriate to describe someone or something as “ableist?” Is it better to use this word when people are purposefully oppressing you and your rights or can it be used casually to spread awareness of the things in society that still need to be changed? Does using t…[Read more]

Do you drive with a brace or an AFO ? Are you worried about getting in an accident because of it? Do you take them off while you drive because you don’t feel safe driving with them?

Gene Therapy for Muscular Dystrophy

“Conner Curran was 4 years old when he was diagnosed with Duchenne muscular dystrophy, a genetic disease that causes muscles to waste away. Five years later, Conner is not just walking, but running faster than ever, thanks to an experimental gene therapy that took more than 30 years to develop. Conner was the…[Read more]