Activity

To our valued and loyal members of the Muscular Dystrophy Forums, Dani and I are saddened to inform you that we will no longer be moderating the forums as of today, February 28. 
Fortunately though, the forums will still be operational. We encourage you to continue to participate in topics by joining discussions and sharing your…[Read more]

Rare Disease Day is an observance held on the 28th of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families

There are over 300 million people living with one or more of over 6,000 identified rare diseases around the world. The MDA classified…[Read more]

February is Rare Disease Awareness Month. All month long, people around the world raise their voices to educate and raise awareness with their stories regarding the lives they lead with rare diseases. 
 
In recognition, members of the rare disease community are sharing why rare disease awareness matters to them with the help of BioNews. Each…[Read more]

I had an accident last year due to a crack in the sidewalk. It damaged my wheelchair and I was injured. We asked the city of Wilmington to pay for the damages as they have downtown ambassadors that walk around and report things that need to be fixed. I was denied and the city of Wilmington was found to be NOT at fault but instead the construction…[Read more]

Hey everyone! Let’s discuss inclusive fashion and beauty. I came across an organization I wanted to highlight.
Guide Beauty is a company with a uniquely designed line of universally inclusive makeup applicators. As they say, “an idea born of love and challenge,” their tools can be used for the beginner learning new techniques, the profe…[Read more]