Muscular Dystrophy News Forums | Licorice | Activity https://musculardystrophynews.com/forums/members/barbara-nemiroff/activity/ Activity feed for Licorice. Fri, 24 Apr 2026 18:13:34 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 65abc5c5ef5c9aa5eb3b037a0b8e3d55 Licorice replied to the discussion Activities with Hands Affected by MD in the forum Events and Activities https://musculardystrophynews.com/forums/forums/topic/activities-with-hands-affected-by-md/#post-13283 Sat, 27 Jul 2019 15:40:06 -0500 Reply to Activities with Hands Affected by MD

Dear Dani,

I see the posr, but can’t get it to open.

Do you have any suggestions?

TIA.

Barbara

 

 

]]> e7e1f26ae8e67f9d2fc74b1c6d29146a Licorice replied to the discussion Leah Leilani is Grieving the Loss of Her Beloved Pet in the forum Adults​ ​With​ ​Muscular Dystrophy https://musculardystrophynews.com/forums/forums/topic/leah-leilani-is-grieving-the-loss-of-her-beloved-pet/#post-13282 Sat, 27 Jul 2019 15:34:40 -0500 Reply to Leah Leilani is Grieving the Loss of Her Beloved Pet

Dear Leah,

I don’t know what we would do without our pet.

When our Casey leaves our lives, we plan to get another rescue cat as soon as possible,  for ourselves, and for the next cat who deserves a loving home.

I wish you peace in the loss of Andre.

Barbara

]]> a8007ccb5d48b9fd7eba66462ca9bbfc Licorice updated their profile https://musculardystrophynews.com/forums/activity/p/2088/ Tue, 16 Jul 2019 04:37:00 -0500 0 f4d10830457dbebf3cfb0201e0620395 Licorice posted a new activity comment https://musculardystrophynews.com/forums/activity/p/1561/ Tue, 07 May 2019 15:31:20 -0500 We have Tuft and Needle mattress, which we bought too hastily. It’s now too firm/hard for me. I contacted the company, and they sent us, for free, their mattress topper,, but at only one-inch thick, it can’t help much. However, with my height at 5’0”, I wouldn’t be able to get onto the bed with a thicker topper.

    ]]>     0     145eecd43552f699c6e72673a5435cfe Licorice posted an update: Still working with the contour one, giving it time with […] https://musculardystrophynews.com/forums/activity/p/1560/ Tue, 07 May 2019 15:21:57 -0500 Still working with the contour one, giving it time with each change we make to it. Been getting more headaches, but I’m it may be coincidental because my headaches cannot be attributed to just one factor. I’m under a great deal of stress, I have a new mouth guard, etc.

    Also, I have another pillow coming. A very generous friend arranged for… Read more

    ]]>     0     1bfc35bd70e5d11b72af9d678daf0edc Licorice replied to the discussion Supportive pillows for your neck pain in the forum Mobility Aids and Medical Equipment https://musculardystrophynews.com/forums/forums/topic/supportive-pillows-for-your-neck-pain/#post-12302 Tue, 07 May 2019 00:50:57 -0500 Reply to Supportive pillows for your neck pain

    After driving my self crazy with too much advice from the internet and Facebook and my own anxiety-driven internet searching, I ordered two pillows from a local company. Mind you, except for Sleep Number, I didn’t try them in person; one huge focus in my “pillow quest” was the ability to return), I got good feelings from email exchanges with… Read more

    ]]>         fa79b4634f0ff704b78f057161c2eca1 Licorice replied to the discussion Physical Comfort During the Day: Pain from MD in the forum Tips, Tricks, and Advice https://musculardystrophynews.com/forums/forums/topic/physical-comfort-during-the-day-pain-from-md/#post-12324 Tue, 30 Apr 2019 22:04:27 -0500 Reply to Physical Comfort During the Day: Pain from MD

    Hi Dani, The Amazon reviews for that particular Cat Napper mostly comment on its large size; I’m 5’0”! Thank you anyway.

    ]]>         69550af3b9e2ba27e22f14c0f391216a Licorice replied to the discussion Supportive pillows for your neck pain in the forum Mobility Aids and Medical Equipment https://musculardystrophynews.com/forums/forums/topic/supportive-pillows-for-your-neck-pain/#post-12304 Tue, 30 Apr 2019 18:40:20 -0500 Reply to Supportive pillows for your neck pain

    I have been on an online pillow quest recently, Leah. It has nearly stressed me out,  I have now spent 4 nights on this pillow, which sounds like yours:

    https://www.snugglepedic.com/contour-pillow/. I’ve traded emails with the company, and get a very good feeling about their customer service.

    As for headaches, they’ve been a terrible… Read more

    ]]>         8e618bb5402363703c1651056759f282 Licorice replied to the discussion 6 of the Best Apps for Chronic Illness Management in the forum Adults​ ​With​ ​Muscular Dystrophy https://musculardystrophynews.com/forums/forums/topic/6-of-the-best-apps-for-chronic-illness-management/#post-12344 Tue, 30 Apr 2019 15:39:34 -0500 Reply to 6 of the Best Apps for Chronic Illness Management

    Thank you for this list!

    ]]>         13e669647941aa6fd3408e7b76eadb26 Licorice posted an update: Hi Leah, Is it possible for you to post a link, or […] https://musculardystrophynews.com/forums/activity/p/1497/ Tue, 30 Apr 2019 15:37:28 -0500 Hi Leah,

    Is it possible for you to post a link, or any other way to find and take a look at your adjustable sofa? Thank you!

    ]]>     1     8e89e14aa0ee4a2010e112420e9e7007 Licorice replied to the discussion Physical Comfort During the Day: Pain from MD in the forum Tips, Tricks, and Advice https://musculardystrophynews.com/forums/forums/topic/physical-comfort-during-the-day-pain-from-md/#post-12303 Sat, 27 Apr 2019 16:04:02 -0500 Reply to Physical Comfort During the Day: Pain from MD

    Has anyone had success making themselves comfy on a couch? We have an adjustable one, that is too deep for me, at 5’0”. We should never have bought it

    We have a setup of cushions and pillows  that doesn’t work for me at all. Besides being short, I have lordosis from the MD, weak ab and neck muscles.  Our current setup ends up with me… Read more

    ]]>         4de8b101c3c35acd1e59e6d699ec751c Licorice posted a new activity comment https://musculardystrophynews.com/forums/activity/p/1431/ Tue, 23 Apr 2019 02:21:48 -0500 All those, plus pressure pint pain has begun. No, I hardly sit in my wheelchair; I’m mostly on the bed. I guess that’s where there’s less gravity keeping me reach the multiple remote controls, the phone, pillows and a lot more.

      ]]>       2       6baf337b4b6c3a4604f3d8a43e87dd42 Licorice posted a new activity comment https://musculardystrophynews.com/forums/activity/p/1430/ Tue, 23 Apr 2019 02:14:10 -0500 I use Ambien and Trazodone, and vape cannabis before I go to sleep.
      Hi Dani and Leah,

      I’m 61, so by now, issues are all tangled-up together, so I’ll try to condense here.

      I inherited FSHD from my mother, Probably anxiety too. Nature, nurture, and just living my life, combine to exacerbate my anxiety and created a need for sleep meds. The… Read more

      ]]>       1       b5871ad37d2429048394ada82d0cbefd Licorice posted an update: My neurologist, who has experience with FSHD, told […] https://musculardystrophynews.com/forums/activity/p/1417/ Mon, 22 Apr 2019 17:47:19 -0500 My neurologist, who has experience with FSHD, told my partner and me to do what we could to make/me comfortable. I would love to see a forum on this subject, my FSHD has progressed to the point where the only time I’m not uncomfortable is when I’m asleep at night (aided by sleep meds, and, sometimes, vaping cannabis.)

      ]]>       1       d7321897938cb18a1a02bb5fbd243d28 Licorice posted a new activity comment https://musculardystrophynews.com/forums/activity/p/1416/ Mon, 22 Apr 2019 16:04:45 -0500 Hi Dani,

      I did make a suggestion yesterday for a new forum about physical comfort. Since I’m new, I don’t know if I can see the request, how such requests are handled, etc. Can you fill me in a little?

      I’m very glad you “friended” me; I will write more later. I’m kind of a mess just now.

      Barbara

        ]]>         2         ce9311d44e466abb1e063eb5fecbb2c5 Licorice became a registered member https://musculardystrophynews.com/forums/activity/p/1407/ Sun, 21 Apr 2019 18:25:08 -0500 2 d09d5d78fc45c782c29d621b2c72ce50 Licorice updated their profile https://musculardystrophynews.com/forums/activity/p/1405/ Sat, 20 Apr 2019 18:45:04 -0500 0